I was wondering if anyone has contacted Dr Potter to send her protocol for the 3t MRI to their local imaging center. I have recently had a 3t MRI, non Potter style, of my lower back and pelvis which has turned up nothing out of the norm that could be causing my condition. They did see a small lesion on my sacrum which will need a follow up MRI in 2-3 months for precautionary reasons. I want to take that opportunity to get a Potter MRI using her protocol, I already spoke to my doctor about this and she is on board. I was wondering do I contact Dr Potter or should I locate the radiologist who will be doing my scan to contact her, also what is her contact info so I can pass it along.
Anyone that can help it would be greatly appreciated, it's been a year with this mystery condition that I hope to shed some light on with the MRI. Been going to Stephany Pendergrast's practice with a new PT who is helping with mayo facial and trigger point therapy, so far it's helped somewhat and I'm learning at home techniques that help manage the pains. She doesn't think I have PNE but possible neuropathy from compression. Everything in my pelvis is tight and restricting normal nerve movement. Hopefully she is right and the Potter MRI will concur.
Thanks for your help,
Matt
Potters contact information
Re: Potters contact information
Hi Matt,
From what I've heard, your radiologist needs to contact Potter to get the protocol.
Violet
From what I've heard, your radiologist needs to contact Potter to get the protocol.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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- Posts: 58
- Joined: Thu Oct 28, 2010 7:06 pm
Re: Potters contact information
Can someone please post Dr. Potter's CURRENT contact information?
Thanks so much,
Jackie Ouch
Thanks so much,
Jackie Ouch
Started with severe burning sacral pain to R hip/pelvis, bladder, bowel
History Endometriosis
Antolak Diagnosed PN--1 PN block made pain much worse & more widespread for a year
PT 2 yrs--Did not help physically, but was educational
Potter MRI: Symmetric thickening Sacrotuberous ligaments/scarring ischial & Alcocks canal.
History Endometriosis
Antolak Diagnosed PN--1 PN block made pain much worse & more widespread for a year
PT 2 yrs--Did not help physically, but was educational
Potter MRI: Symmetric thickening Sacrotuberous ligaments/scarring ischial & Alcocks canal.
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- Posts: 58
- Joined: Thu Oct 28, 2010 7:06 pm
Re: Potters contact information
I have found a Tesla 3T MRI in my area, now I just need to find out how my radiologist can contact Dr. Potter.
Please private message me if you have any information.
Thank so much,
Jackie OUCH
Please private message me if you have any information.
Thank so much,
Jackie OUCH
Started with severe burning sacral pain to R hip/pelvis, bladder, bowel
History Endometriosis
Antolak Diagnosed PN--1 PN block made pain much worse & more widespread for a year
PT 2 yrs--Did not help physically, but was educational
Potter MRI: Symmetric thickening Sacrotuberous ligaments/scarring ischial & Alcocks canal.
History Endometriosis
Antolak Diagnosed PN--1 PN block made pain much worse & more widespread for a year
PT 2 yrs--Did not help physically, but was educational
Potter MRI: Symmetric thickening Sacrotuberous ligaments/scarring ischial & Alcocks canal.
Re: Potters contact information
Hi Jackie,
Is the contact info we have for Dr. Potter incorrect?
Hollis G. Potter, MD
Chief, Magnetic Resonance Imaging
Professor of Radiology
Weill Medical College of Cornell University
The address is as follows:
Diagnostic Radiology
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street
New York NY 10021
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the clitoris or penis especially passing through the pubic bone.
To be reviewed by Dr. Hollis Potter.
Please have it faxed to 212-774-7295 by your doctor and then call MRI department at 212-774-7296 to schedule an appointment.
It didn't pick up ANY abnormalities, not even post-operative changes after my TG surgery OR the neurectomies I had last year. To add insult to injury, my report states:
"Sacrospinus ligaments appear intact".
My ordering phsycian personally contacted Dr. Potter to request she re-read my images. Her report repeatedly states: "There are marked differences in spatial and through plane resolution in the scans, making comparison limited".
KInd regards,
Karyn
Is the contact info we have for Dr. Potter incorrect?
Hollis G. Potter, MD
Chief, Magnetic Resonance Imaging
Professor of Radiology
Weill Medical College of Cornell University
The address is as follows:
Diagnostic Radiology
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street
New York NY 10021
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the clitoris or penis especially passing through the pubic bone.
To be reviewed by Dr. Hollis Potter.
Please have it faxed to 212-774-7295 by your doctor and then call MRI department at 212-774-7296 to schedule an appointment.
Just wanted to give you a heads up. I had a 3T MRI in RI this past summer, which was supposed to be the equivalent of a Potter MRI. Not so much ...JackieOUCH wrote:I have found a Tesla 3T MRI in my area, now I just need to find out how my radiologist can contact Dr. Potter.
It didn't pick up ANY abnormalities, not even post-operative changes after my TG surgery OR the neurectomies I had last year. To add insult to injury, my report states:
"Sacrospinus ligaments appear intact".
My ordering phsycian personally contacted Dr. Potter to request she re-read my images. Her report repeatedly states: "There are marked differences in spatial and through plane resolution in the scans, making comparison limited".
KInd regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Potters contact information
Wow Karyn, that's scary. At least you had the prior MRI to refer to, and to question the results.
Either the protocol wasn't followed correctly, or whom ever read the scans were way off.
I guess it sounds like going to NY is still the only way to get an accurate interpretation.
Debbie
Either the protocol wasn't followed correctly, or whom ever read the scans were way off.
I guess it sounds like going to NY is still the only way to get an accurate interpretation.
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .