I have had pudendal pain (sitting and penis) pain since 2004. I had pudendal decompression re-surgery by Dr. Hibner Nov 12, 2012. Recovery seemed to be going well for the first 2 months. I am taking the same pain med (methadone) and same amount that I took before this surgery.
Starting at about 2 months out the penis tip pain started getting worse. Then about 5 days ago, unfortunately I had to spend about an hour outside in zero degree Farenheit weather, twice over 2 days (no electricity and generator problems).
Starting the next day or 2 my pelvic area started spasming. Not sure which muscle yet. Yesterday and today the spasms are pretty awful, which of course leads to more penis pain also.
Does anyone know if exposure to extreme temperatures could cause pelvic muscle spasms?
Second question...Dr. Hibner repaired a severed Sacrotuberous ligament by patching in a 4 inch strip of cadaver. Does anyone know if the "reactivation" of the ligament or the cadaver part could cause spasming? I have no idea how the body handles the cadaver parts and cannot find any posts on this subject.
Thanks in advance if anyone can help on either question. Kit.
Can extreme cold weather cause pelvic muscle spasm?
Can extreme cold weather cause pelvic muscle spasm?
Kit Male age 74 Sitting pains started 10/2003. I have had about 14 years of pudendal nerve pain, including 3 surgeries by Ansell, Filler, and Hibner. None did any good. But finally, I discovered the DRG (dorsal root ganglion) neurostimulator. It was implanted on Dec 28, 2017. It has been a miracle to me. My quality of life has improved 95%, and reduced the pain by about 60%. Anyone with Pudendal pain should consider a DRG neurostimulator.
Re: Can extreme cold weather cause pelvic muscle spasm?
Kit were you doing anything strenuous like trying to pull the cord to start the generator? Maybe that threw your alignment out or something?? Maybe a combination of the cold and the strenuous activity has put you into a flare-up. Please take it easy and hopefully things will settle down soon. Maybe seeing a manual therapist will get things back in alignment if that is a problem.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Can extreme cold weather cause pelvic muscle spasm?
Well, I am going to reply to my own question. In the 10 years of having pudendal pains, I have often had problems with the pelvic floor muscles on my right side. But always they had just put pressure on the pudendal nerve and thus causing more penis pain. Never had a pelvic floor muscle itself actually caused pain itself.
As a result of being outside in zero degree F weather for an hour die to an electrical outage, for a period of 6 days, one of my pelvic floor muscles spasmed so much that I could not lay at all. So if I stood up I had level 8 penis pain. And if I layed down on my side I had level 8 pain from a pelvic floor muscle. I think it was the obturator internus, but it could have been the levator ani.
There are no other conditions or considerations that I can think of that might have caused this except for the exposure to cold.
After 6 days of hell, the muscle pain just went away. I assume that that muscle is still spasming and causing pressure on the pudendal nerve. But it is not causing muscle pain when I lay down.
This is just to provide info in case it might help someone else.
As a result of being outside in zero degree F weather for an hour die to an electrical outage, for a period of 6 days, one of my pelvic floor muscles spasmed so much that I could not lay at all. So if I stood up I had level 8 penis pain. And if I layed down on my side I had level 8 pain from a pelvic floor muscle. I think it was the obturator internus, but it could have been the levator ani.
There are no other conditions or considerations that I can think of that might have caused this except for the exposure to cold.
After 6 days of hell, the muscle pain just went away. I assume that that muscle is still spasming and causing pressure on the pudendal nerve. But it is not causing muscle pain when I lay down.
This is just to provide info in case it might help someone else.
Kit Male age 74 Sitting pains started 10/2003. I have had about 14 years of pudendal nerve pain, including 3 surgeries by Ansell, Filler, and Hibner. None did any good. But finally, I discovered the DRG (dorsal root ganglion) neurostimulator. It was implanted on Dec 28, 2017. It has been a miracle to me. My quality of life has improved 95%, and reduced the pain by about 60%. Anyone with Pudendal pain should consider a DRG neurostimulator.
Re: Can extreme cold weather cause pelvic muscle spasm?
Cold weather is surely worsening all pelvic pains, because the muscles are always involved.
is your pain positional? I mean you feel immediate difference when standing, sitting, laying...?
is your pain positional? I mean you feel immediate difference when standing, sitting, laying...?
summer 2009 - episodic post ejaculatory pain,
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Can extreme cold weather cause pelvic muscle spasm?
Thank goodness you feel better now Kit. I could well imagine that freezing whether could have this effect when you already have nerve and muscle issues. Did you rest much when experiencing the pain? Just asking because if anything like this does happen again, you will know what makes it disappear 
Take care, and thanks for the update.
Helen
Take care, and thanks for the update.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.