TG with Hibner SIJD problems

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Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

TG with Hibner SIJD problems

Post by Faith »

Are there any patients on here of Dr. Hibners who have had the TG surgery who either had SIJD prior to surgery or started having SIJD problems afterward? Just would like to hear people's experience in regards to SIJD and especially Dr. Hibner (although any other TG post surgical pts feel free to respond). So much to figure out!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: TG with Hibner SIJD problems

Post by AliPasha1 »

Hi Faith,
To our knowledge nobody has claimed of any SIJD issues so far ,because he repairs the Sacrotuberous ligament.
Best Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: TG with Hibner SIJD problems

Post by HerMajesty »

Faith, since I work with the SIJD guy I enquired about this on behalf of another Hibner patient. he said ligament repair is well researched and reliable; there is no reason to worry that a new problem would arise afterwards.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: TG with Hibner SIJD problems

Post by Celeste »

Not that it matters specifically to you at this point, Faith, but to others I would add that the Houston team reports that since they instituted a surgical pre-requisite of screening by a PT at Womens' Hospital in Houston, they have had NO reports of SIJD post op. Not one. This says to me that ligament "repair" is not required by any means. Also remember that there is nothing in the medical literature that has studied SIJD with regards to ligament removal OR "repair". I'm not asking you to believe me. I'm just telling you some facts.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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Violet M
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Re: TG with Hibner SIJD problems

Post by Violet M »

Celeste wrote: the Houston team reports that since they instituted a surgical pre-requisite of screening by a PT at Womens' Hospital in Houston, they have had NO reports of SIJD post op.
Celeste, what do they screen for? And if you don't pass their screening, then are you denied surgery?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: TG with Hibner SIJD problems

Post by Celeste »

Violet M wrote:
Celeste wrote: the Houston team reports that since they instituted a surgical pre-requisite of screening by a PT at Womens' Hospital in Houston, they have had NO reports of SIJD post op.
Celeste, what do they screen for? And if you don't pass their screening, then are you denied surgery?
They look for sacral problems, but I don't know how they do it, having not gone through it myself. Fatima Hakeem used to see them all, but other PT staff also do these evaluations. I've heard lots of good feedback on the group, though.

I don't really know if Dr. Ansell actually denied somebody surgery because of their PT result, or just recommended that they not have it. People have been told they're "not candidates for surgery" because of other health issues, according to some reports I've seen on the other forum. That may be the actual wording that they use rather than denied. I don't know the frequency of somebody not passing the screening; I just assume it does happen. Maybe I can get the answer next week.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: TG with Hibner SIJD problems

Post by AliPasha1 »

In other words,if you don't pass the so called "Screening tests",then please proceed somewhere else like Dr. Hibner to have your surgery.The fact is that most probably one is going develop SIJD issues,if their Sacrotuberous ligament is severed.Dr. Bautrant,Dr. Beco,Dr. Antalok,Dr. Jerome Weiss and Dr. Hibner are all of the opinion that the Sacrotuberous ligament is pivotal for Pelvic stability.Either it should be left alone or should be repaired during surgery.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: TG with Hibner SIJD problems

Post by pianogal »

exchanging PNE for SIJD would be exchanging one hell for another
and my husband who is a PT with a Doctorate treats SIJD patients all the time.
He is convinced those ligaments are necessary for stability in many patients and I am sorry, but Renney's team is making a huge huge mistake not repairing the ligaments. Also, I've heard many of their patients I've heard come back post surgery with IC, they have low success rates, and I think it is very unwise that they sever the ligaments unnecessarily.

the fact that Renney's team now screens out for sacroiliac joint susceptibility must be because their surgery will further the pains in the sacroiliac region if the surgery is proceeded in by patients with sacroiliac susceptibility, or lax pelvic structures, or even hypermobility.

celeste, I think you may have just gotten lucky

when my husband and I met with Renney in 2004, we mentioned this issue to him. at the time he said, there's no way anybody could get sacroiliac disfunction from the surgery. And yet, now they are screening? Why? Must be because a lot of people with susceptibility did get messed up by the surgery. We told him back in 2004 that it was an issue... and that's why that will be the last surgery I ever try. I know I'm not better yet... but at least I'm not worse with SIJD AND PNE!
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: TG with Hibner SIJD problems

Post by HerMajesty »

pianogal wrote: I've heard many of their patients I've heard come back post surgery with IC
IC was my 1st SIJD symptom long before I got the PNE so this makes a lot of sense to me!

As to Celeste being lucky, who knows if her pelvis is balanced, it is certainly possible to have SIJD and be asymptomatic.

When I 1st found out that I had a leg length discrepancy and that it was not a true difference in femur length but secondary to an uneven pelvis, I was telling a friend and she said she had a leg length discrepancy too, since childhood. Her pediatrician had told her to wear a heel lift but she was not comfortable with it, so she just favored the longer leg. I asked her if she had any pelvic symptoms and she said when she had to urinate she really had to go bad and could not hold it, but she considered this normal for a middle aged woman with children and had no complaints.

After I had my pelvis fixed by Jerry Hesch and started working with him, my friend came in for Jerry to look at her hands as she was getting a repetitive motion injury from work. I asked him to look at her pelvis for curiosity, and it turns out her leg length discrepancy really was due to SIJD she had for maybe 40 years. He fixed it which evened up her legs. I asked her once since then if her urinary urgency was helped, and she said she had been "too busy to notice"...definitely what I would call asymptomatic SIJD!

There's really no way of telling what percent of people with SIJD have no significant symptoms, as only the significantly symptomatic ones seek treatment.

But I think it is irresponsible to put people at the risk of becoming symptomatic, by not repairing the ligament...when ligament repair is a well established procedure which is becoming standard for other practitioners in the field. Why NOT repair it?
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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