leg pain and PNE?

[Jackson]

Hi,

Anyone here experienced leg pain with PN or PNE?

I seem to recall someone saying they had inner thigh pain before their op?

Was it you Voilet?

My leg pain seems to start in the inner thigh but then spreads to the thigh and over the knee.

It only started spasmodically 18 monthes ago after "pudendal pain" ( which started say 4 years ago) but is becoming increasingly disabling. It's not like any pain I've experienced in the limbs in the past. Gets so bad at times I have to lie down for an hour or so until it goes away.

Cheers

[Karyn]

HI Jackson,
Yes, many of us have pain in the lower extremities. Myself included.
It's possible you have symptoms of other pathologies causing your leg pain. The PN does not innervate the lower extremities. Have you had imaging done of your lumbo-sacral plexus? Have you ever had an obturator block?
Kind regards,
Karyn

[helenlegs 11]

Hi Jackson,
Yes leg pain is often experienced with PN and as Karyn said, the obdurator nerve would explain some of the leg area you mention. Take a look at the attachment it may help you work things out although it is just a guide.
Take care,
Helen

[nyt]

Many of us on this forum experience leg pain that is because when the muscles in the pelvis spasm due to the PN they spasm around the nerves that the innervate the legs. Also, these muscle spasms together with how we all tend to sit in ways to avoid increasing pain results in our hips getting out of alignment which then becomes mechanical issue that results in leg pain. Three very common nerves that seem to be a secondary complication of PN are sciatic, posterior femoral cutaneous nerve, and obturator nerve. The sciatic and posterior femoral cutaneous nerve are affected by the piriformis muscle and many of us have piriformis syndrome in other words really tight butt muscles. The obturator internus and obturator externus muscle is often tight and spasmsed in individuals in PN which affects the obturator nerve. For that matter any individual with pelvic floor spasms or levator ani syndrome have complaints of leg pain. One should always be checked to make sure their really isn't a secondary nerve that is entrapped or damaged. It is not uncommon that in order for an individual to see improvement in the leg pain or resolution of the leg pain they have to address both the pelvic floor muscle spasms and any mechanical misalignment problems. However, one must always look at their own personal medical history to help figure this all out. It really makes one appreciate the difficultly pelvic pain specialist have in trying to figure out what is the primary cause of the pain and what are secondary problems.

[Jackson]

It's possible you have symptoms of other pathologies causing your leg pain. The PN does not innervate the lower extremities. Have you had imaging done of your lumbo-sacral plexus? Have you ever had an obturator block?
Kind regards,
Karyn

Hi Karyn,

Yes, I had a Lumbar Plexus MRI two years back in relation to the genital pain but that was before this left leg pain started. I've not had an obturator nerve block, though.

Can't stand or sit at computer for long so I don't read a lot of the posts. But I seem to recall that you have quite a few issues in your pelvic region to contend with? Not much fun is it!

Cheers and thanks for your help

[Jackson]

Many of us on this forum experience leg pain that is because when the muscles in the pelvis spasm due to the PN they spasm around the nerves that the innervate the legs. Also, these muscle spasms together with how we all tend to sit in ways to avoid increasing pain results in our hips getting out of alignment which then becomes mechanical issue that results in leg pain. Three very common nerves that seem to be a secondary complication of PN are sciatic, posterior femoral cutaneous nerve, and obturator nerve.

Hi nyt,

I can see where you're coming from in relation to the flow on effects of PN pain on the nerves you mention. I just did a body awareness test and noticed I'm tensing my perineum (spasm?) no doubt due to pain, although I'm not in a great deal of pain down there just at the moment which accounts for me being on the forum, but I guess the brain has become wired by now -tensing in response to genital pain. In looking at Helen's diagram it would look more like the anterior part of the femoral nerve and the obturator nerve that would be the culprits if it is indeed a nerve issue.

I've got to do something as I'm spending far too much time on that bed due to the leg, alone.

Oh, looking at your profile, did that surgery work for you?

Thanks for the detailed info. Cheers Jackson

[nyt]

Jackson, I've had several surgeries. Each have helped some and I am happy with any improvement. My case is complicated by the fact I do have multiple nerves that were damaged by a hysterectomy and bladder sling plus CPRS in both of my legs. My obturator nerve damage is worse than my pudendal and I know it is aggravated by my very dysfunctional pelvic floor because when I get botox to the pelvic floor muscles my adductor muscle spasms improve a little bit. Plus, if my pelvic floor PT gets even a little too aggressive with the obturator internus muscle it worsens my adductor muscle spasms because it aggrevated my obturator nerve.

[Violet M]

Hi,

Anyone here experienced leg pain with PN or PNE?

I seem to recall someone saying they had inner thigh pain before their op?

Was it you Voilet?

Yes, Jackson, I had severe burning pain on the inner thighs. My PT said it was due to the obturator internus being in spasm. Also had sciatica type pain on the right side ( same side as the PN ) that caused an aching, numb feeling in the right leg and foot. This was caused by the piriformis being in spasm.

Violet

[Jackson]

[/quote]

Yes, Jackson, I had severe burning pain on the inner thighs. My PT said it was due to the obturator internus being in spasm. Also had sciatica type pain on the right side ( same side as the PN ) that caused an aching, numb feeling in the right leg and foot. This was caused by the piriformis being in spasm.

Violet[/quote]

Hi Voilet, yes there are some similarities. Mine is right buttock pain (throb) with leg issues to heel. But the worst genital pain is on the left side and the inner thigh is also on the left (but not burning). I put on the last post it also includes anterior thigh but I've noted on a previous post that I said , then, it was also left posterior, too.
It does feel like it starts in the obturator distribution area then spreads to back and/or front thigh to eventually envelop the knee-that's when I hit the bed. I think you answered this question for me once before but I'd forgotten .

Cheers.

[elephants27]

I have been having not only leg pain for several months now, but i just realized another nerve in my butt is causing my groin area and my legs to go numb. I felt it today, as the numbness and tingling went all the way down to my calfs. I didn't realize this before, but it is probaly the cause of my leg pain. About a year ago, my legs started getting numb & then they were very heavy to even pick up or move. It was very painful. My scatic nerve is fine. And this only happens once in a while, but now i can feel a different part of my butt go numb, and i can follow where the numbness leads too. What is everyone doing about this? Does anything work? I have been suffering from pn for 5 years now, and it was only after the first nerve block 3 years ago, that my butt now falls asleep after only sitting for 5 minutes. But this is uncomfortable, since now it is effecting laying down, and for most of us, that is the only comfortable position for us. Thanks, and gluck to all of you!