freezing the pudendal nerve
freezing the pudendal nerve
I talked to the nurse at the pain clinic today. I asked her about the generic botox. She said the person here that told you that was wrong. She said I will be seeing the Dr at my next appointment and we will discuss freezing the pudendal nerve, I said really? And may I ask how long does this last. She told me about a year. She said they have helped pudendal patients. . :: my question ,have any of you heard of this .Should I stay away from this?
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: freezing the pudendal nerve
I would suggest a second opinion, as well as further questioning of the doctor who offered the procedure, to make sure this is safe for nerves with dual sensory / motor functions. Without pudendal nerve motor function you would lose bowel and bladder control. I have heard of freezing used to "deaden" a painful sensory nerve. My instinct is that if it were that simple for pudendal pain, more of our pudendal specialists would be doing it. I don't have a definitive answer, but my alarm bells are going off about what would happen to motor function.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: freezing the pudendal nerve
Must agree with HM Ellie.
CRYONEUROLYSIS
Cryoneurolysis is the freezing of a peripheral nerve to obtain analgesia. This is performed with the use of a cryoprobe connected to a cryoneurolysis machine that also allows for nerve stimulation to help target the nerve. Once the probe is in place, a small ice ball forms at the tip. This provides an analgesic effect that lasts for weeks to months without damaging the frozen structures. Nerves that respond well to freezing include the ilioinguinal nerves, intercostal nerves, and occipital nerves.
As HM mentioned, motor functions of the nerve would be effected with this procedure, which isn't what anyone would want!!. Check out what they do mean with this procedure, please.
Helen x
CRYONEUROLYSIS
Cryoneurolysis is the freezing of a peripheral nerve to obtain analgesia. This is performed with the use of a cryoprobe connected to a cryoneurolysis machine that also allows for nerve stimulation to help target the nerve. Once the probe is in place, a small ice ball forms at the tip. This provides an analgesic effect that lasts for weeks to months without damaging the frozen structures. Nerves that respond well to freezing include the ilioinguinal nerves, intercostal nerves, and occipital nerves.
As HM mentioned, motor functions of the nerve would be effected with this procedure, which isn't what anyone would want!!. Check out what they do mean with this procedure, please.
Helen x
Last edited by helenlegs 11 on Sun Jan 20, 2013 3:04 am, edited 1 time in total.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: freezing the pudendal nerve
Helen, a different nurse called me back. It is exactly what you said, the crynolasis.. I read your post to her.. she said well you are reading something off of the internet and you do not know what this is.. I said but I do know , and I need to know if your clinic deals with pudendal nerve.. wel we deal with all nerves... make a long story short, she did not know anything about pudendal , she was going to have the Dr call back.. I have not heard.. he may have to look up pne. So so much for that pain clinic.... The steroid shots I had for the sciatic did nothing... I am off of the oxycontin... took me about 4 months, but I did it.. I have a huge flare today, I have only been off for 4 days now and my family is thrilled.... I need to find something else to relax the nerves... valium? or relax me..
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: freezing the pudendal nerve
Hi Ell,
I've got to stand with Helen and HM. Please don't do this.
The PN doesn't fall into these catagories. Are you sure their intent was to target the PN and not another nerve?
I thought there was a thread here somewhere about cryoablation/cryoneurolosis. From what I can remember, the procedure was very painful and ineffective.
Huge congrats about getting off the oxy! Valium seems to work very well for most of us.
Love,
Karyn
I've got to stand with Helen and HM. Please don't do this.
helenlegs 11 wrote:Nerves that respond well to freezing include the ilioinguinal nerves, intercostal nerves, and occipital nerves.
The PN doesn't fall into these catagories. Are you sure their intent was to target the PN and not another nerve?
I thought there was a thread here somewhere about cryoablation/cryoneurolosis. From what I can remember, the procedure was very painful and ineffective.
Huge congrats about getting off the oxy! Valium seems to work very well for most of us.
Love,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: freezing the pudendal nerve
What disturbes me the most is that the nurses, other staff,was telling me that they deal with pudendal. I have no clue how they do it.. When I was on the table waiting for the steroid shots, I mentioned to the nurse, does anyone deal with pudendal pain here, the guy said sure we do, it is a generic of botox. The Dr. gives injections... Well I was very mislead... I in no way was going to let them do something to me that was harmful.... It is a very fancy , beuatiful clinic... From now on I will ask many questions before hand.Thank you Karyn, Helen , I always trust your judgement.. 
Ellie
EllieSurgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: freezing the pudendal nerve
Did you ever get a call back, Ellie? Maybe there's been some kind of misunderstanding or miscommunication? I don't know why they would be targeting your PN ....river133 wrote:Helen, a different nurse called me back. It is exactly what you said, the crynolasis.. I read your post to her.. she said well you are reading something off of the internet and you do not know what this is.. I said but I do know , and I need to know if your clinic deals with pudendal nerve.. wel we deal with all nerves... make a long story short, she did not know anything about pudendal , she was going to have the Dr call back.. I have not heard.. he may have to look up pne.
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: freezing the pudendal nerve
Karyn,what I was asking ,was about the botox that some pn people do. No ,I am sorry if that is what you got from this. They talked about the injections into the nerves. They. just kept telling me that they have had pn patients,but it seems they do not know about pn. I will sit down with them and we will get this all straighned out. So we all have a better understanding. 
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: freezing the pudendal nerve
river133 wrote:Karyn,what I was asking ,was about the botox that some pn people do
I guess I'm really confused, Ell. Sorry. I did think we were talking about "freezing the PN" and to the best of my knowledge, I don't believe botox is injected into nerves.river133 wrote:When I was on the table waiting for the steroid shots, I mentioned to the nurse, does anyone deal with pudendal pain here, the guy said sure we do, it is a generic of botox.
Did they happen to mention where they wanted to inject you with the botox? Usually, it's for a specific muscle group, such as the piriformis, pelvic floor, etc ... I have no idea what "generic of botox" means.
xoxo
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.