TV 7.30 Report

Dr Thierry Vancaillie
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Mod8
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TV 7.30 Report

Post by Mod8 »

Going to air on Monday 7th Jan. 2013. ABC TV. 7.30 report. Story on pelvic pain & PN

Story also to be in Sunday papers 6th Jan. 2013. Sydney Sun Herald & Melbourne Age.
Mod8
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Joined: Thu Sep 02, 2010 2:18 pm

Re: TV 7.30 Report

Post by Mod8 »

Pelvic pain story on ABC's 7. 30 Report has been delayed due to stories on current fire situation in Tasmania.
Will try and keep updated. It could possibly go on air Tuesday 8th. Jan but not yet confirmed.
Mod 7
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Re: TV 7.30 Report

Post by Mod 7 »

Thanks for the update, Catherine.

Karyn
catherine a
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Location: Perth Western Australia

Re: TV 7.30 Report

Post by catherine a »

Link to pelvic pain story. ABC TV Australia . January 10th 2013.

http://mpegmedia.abc.net.au/news/730/vi ... 1_512k.mp4
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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Karyn
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Re: TV 7.30 Report

Post by Karyn »

Thanks, Catherine.
I wish the story was longer but hopefully it'll catch the attention of the medical community ...
Best,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
catherine a
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Location: Perth Western Australia

Re: TV 7.30 Report

Post by catherine a »

I agree Karen. Very brief but at least we got media attention. Hopefully we will move forward with this.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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