Physical therapy does it work

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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: Physical therapy does it work

Post by Violet M »

Judy, if I didn't do much I could keep my pain levels at about a 5 out of 10 but pain was still constant 24/7. I couldn't even cook a meal -- otherwise pain became intolerable. I can't really say things were improving after lying around for months.

What type of implant are they recommending?

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Dizzyblonde
Posts: 32
Joined: Wed Nov 14, 2012 10:51 pm

Re: Physical therapy does it work

Post by Dizzyblonde »

I'm having some particularly nasty pain at the moment from taking a train ride to visit my specialist and sitting a short time because my feet were so sore from standing. Cumulatively I would only have sat for approx 1 hour and have about 4-5 days acute 8-9/10 pain as a result. If I strictly lay and stand, I can perform light housework and cook meals for the family and maintain pain levels at about 4-5/10. If I step outside of that regime, I'm in trouble. I can't sit at all and haven't been able to at all for about 12 weeks. Prior to that I could sit short periods with breaks. The Spinal Cord stimulator is called a 'Precision Plus' from Boston Scientific. I have a brochure from the specialist and the technician is going to schedule an appointment with me I next few weeks.
Bladder prolapse surgery 1992; hysterectomy & 2nd prolapse surgery next 6 years. PN started 1992 but managed well. Flare in March 2012 ignored signs from prolonged sitting & exacerbated by UTI. PT so far unsuccessful. Two bilateral blocks only right side positive for short time MRI showed PNE left side. Results conflicting so proposed nerve stimulater implant with bilateral PN release to cover all scenarios. Might go ahead approx Feb 2013 Housebound..300mg Lyrica x 2 daily &5mg Endep
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Physical therapy does it work

Post by janetm2 »

How I wish I had a crystal ball or magic wand to make you better or at least help with a decision. It would seem the nerve block that worked for a few hours may point to entrapment and like Violet I had PNE surgery to release the nerve. I am 1 year 7 months post op and slowly getting better except for my current flare that may be starting to subside? I can now sit off and on to work some 8 hour days and other 6 or less when going to acupuncture, PT and or psychologist. I went the surgery choice because I say myself heading towards the pain level 10 for 24/7 and that would mean losing my job and obviously having no quality of life. I can now also cook and at least generally take care of myself. I also have chronic foot pain so housework went away many years ago. I can only sympathize and wish you the best.
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Dizzyblonde
Posts: 32
Joined: Wed Nov 14, 2012 10:51 pm

Re: Physical therapy does it work

Post by Dizzyblonde »

Hi Janet, wow what a decision to make and in your case just the right one. I commiserate with your foot pain, I'm nearly tearing my hair out between the two problems. My MRI showed entrapment left side but my block only worked right side so the specialist I think is covering all bases. My pain is both sides. I think when you're dealing with 10/10 pain 24/7 the decision is pretty well made for you. I appreciate your feedback as I'm at the crossroads and need to get my head around it ready to make my decision. I think my results are conflicting from my various tests and so I've been offered a remedy to hopefully accommodate all avenues. It's just a tough call and I'm nervous.
Bladder prolapse surgery 1992; hysterectomy & 2nd prolapse surgery next 6 years. PN started 1992 but managed well. Flare in March 2012 ignored signs from prolonged sitting & exacerbated by UTI. PT so far unsuccessful. Two bilateral blocks only right side positive for short time MRI showed PNE left side. Results conflicting so proposed nerve stimulater implant with bilateral PN release to cover all scenarios. Might go ahead approx Feb 2013 Housebound..300mg Lyrica x 2 daily &5mg Endep
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Physical therapy does it work

Post by janetm2 »

You have every right to be nervous as the decision is hard. I do find sometimes that the indecision state is the most difficult because you do not have the full clear path forward. I hope whatever you decide comes out with a positive result.
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
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