I have suffered with peripheral neuropathy for the past 14 months following treatment with Bortezomib for Myeloma. It affects the soles of my feet, making walking very painful. In addition I had severe pain all around my rectal area and still cannot sit without leaning to one side of my buttocks. I recently sought help at The London Pain Clinic (none of my medical advisers had offered me other than standard medical treatment - I'm on Fentanyl 75mcg/hour, Pregabalin 450mg and Amitriptyline 50 mg).
I received pulsed radio frequency treatment to my Pudendal Nerve and Ganglion of Impar on 16 November 2012 and am hoping for some improvement. I sympathise with everyone who has this condition. It takes a lot of energy and focus knowing that this might never be cured.
Best wishes to everyone. May you all find peace and be happy.
Pudendal Neuropathy following chemotherapy
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Boleynbloke
- Posts: 1
- Joined: Sun Nov 25, 2012 2:45 am
Re: Pudendal Neuropathy following chemotherapy
Welcome to the forum. I'm sorry you have gone through so much. I met a women once who was suffering from peripheral neuropathy due to radiation for cancer and she was trying hyperbaric oxygen treatments to see if it would help the nerves to heal. I'm sorry I don't know the results of her treatments but it might be something to inquire about from your physician.
Best regards,
Violet
Best regards,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Pudendal Neuropathy following chemotherapy
Hi Boleynboke,
Welcome to HOPE! I'm so very sorry for everything you've gone through. I've often heard of folks acquiring neuropathies after chemo treatments. It just doesn't seem fair to overcome one condition, only to gain another.
I wish you the very best with your PRF treatments and hope you come back to keep us informed about your progress.
We're here to offer kindness, understanding and support.
Best regards,
Karyn
Welcome to HOPE! I'm so very sorry for everything you've gone through. I've often heard of folks acquiring neuropathies after chemo treatments. It just doesn't seem fair to overcome one condition, only to gain another.
I wish you the very best with your PRF treatments and hope you come back to keep us informed about your progress.
We're here to offer kindness, understanding and support.
Best regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.