Update - approximately 1 week after Shockwave Therapy: I have noticed several things..
1. I still have post-therapy alcock's canal pain bilaterally, which is normal. The pain decreases a bit each day.
2. I have an increased tolerance to sitting.
3. I can now stretch and not have any noticeable nerve soreness afterwards. I am really working on my hamstrings and buttocks. Before, this always caused a flare in symptoms.
4. I go back to work tomorrow after having 4 off days. I feel like I can sit again fairly comfortably without setting back any potential recovery. I am still sitting on cushioned pads with perineum cut-outs.
5. I can sneeze and not get pudendal pain shooting through my groin.
6. I have more feeling in my perineum and "other" areas.
7. My bowel feels a bit more easy to pass, although again, it is too early to tell, as there is still some perineum swelling due to the therapy.
I think it is too early to draw any definitive conclusions. I will know more this coming week and will continue to post.
If my improvements are constant and permanent, I will definitely consider going back for more therapy.
kone
New Person with Pudendal Nerve Disorder
Re: New Person with Pudendal Nerve Disorder
Hi Kone,
Thanks for the update. It sounds somewhat promising at this point and I hope you continue to see signs of improvement.
Please be careful not to overdo on things -- that is always a huge temptation as you start to improve.
Best,
Violet
Thanks for the update. It sounds somewhat promising at this point and I hope you continue to see signs of improvement.
Please be careful not to overdo on things -- that is always a huge temptation as you start to improve.
Best,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: New Person with Pudendal Nerve Disorder
Thanks Violet, I appreciate your advice. I am being very careful to not "undo" any potential progress that might have been made through Shockwave Therapy. I am taking it very easy with light stretches and walking. Hopefully, I will have more to report (positive that is) in the future.
kone
kone
Re: New Person with Pudendal Nerve Disorder
Two weeks after Shockwave Therapy: I can sit on cushioned chairs for a much longer time now with very little discomfort. I can stretch my groin and legs without any aftereffects. I am on half of my medication (clonazpeam) and hope to decrease it further this coming week. I can exercise again mildly without any pain. I remain optimistic that the treatment was helpful based on my feeling better and doing more things without pain.
kone
kone
Re: New Person with Pudendal Nerve Disorder
Yay!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: New Person with Pudendal Nerve Disorder
How wonderful for you Kone. Glad to hear there is real improvement. Hope it continues.
Janet
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Re: New Person with Pudendal Nerve Disorder
Thank you very much for posting your news. I wish you well.
Alan
Alan
"if you want to keep a secret you must also hide it from yourself" Orwell
Re: New Person with Pudendal Nerve Disorder
This is great news, Kone! I guess this means you will likely be going back for more treatments -- and for good reason if they are helping you.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: New Person with Pudendal Nerve Disorder
Dr. Andrews' treatment definitely helped me. I am not cured yet as I can still feel symptoms, but I am much better. The full results of the treatment cannot be known yet, but will be apparent in the weeks to come. Dr. Andrews advised at least a 6-8 week healing period before deciding on any more treatment. The week in Cornwall is an expensive one, and all out of pocket expense, so I hope I recover enough so that I don't have to go back, however, finances permitted, I will go back to have another treatment if I do not fully recover. I really want to get my physical life back, as we with PN all do. My case is perhaps unique in that I know the exact event that caused my PN (bike seat) and where I was compressed. Dr. Andrews was able to identify my areas of entrapment and treat them effectively. I was very impressed by his knowledge of the pelvic area and likely entrapment areas. kone
Re: New Person with Pudendal Nerve Disorder
Very exciting! I'm so happy for your improvement. I think Dr. Andrew's treatment can definitely help some people. Keep us posted
Started with vulva itching 2/11. Diagnosed as vulvodynia and then PN in 01/12. Progressed to sitting pain and constant burning. Received 4 nerve blocks with only temporary relief, did year of pelvic PT before being diagnosed with bilateral FAI and hip labral tears 7/12. Did orthopedic PT 1.5 years. 3/13 Arthroscopic hip surgery at HSS with Dr. Kelly. Take cymbalta and lyrica daily. About 97% better than worst point thanks to combo of surgery and meds. Yay!