Hi, I'm Janet from Italy.
I probably have PN, but I haven't got a reliable diagnosis yet, so
some time ago I tried to make a reservation to have a MRI performed by
Dr. Hollis Potter at the Hospital for Special Surgery in NY.
Unfortunately, they told me that Dr. Potter would just read the MRI
and write the report, but I would never meet her. This is not what
I expected, I think that this hospital isn't Dr. Potter's main
location anymore.
I really need to find a hospital where the MRI is performed with her
assistance, and where I can discuss the findings with her, ask her for
suggestions, and so on. Money is not the matter.
Can anyone help me?
Thank you very much.
Janet
DR Potter Fees
Re: DR Potter Fees
Janet,
I just had the Potter's MRI and i had my report back. I did not meet Dr. Potter but was told my doc could talk to her re: questions. I was initially informed by my insurance Dr. Potter is out of my network. However, my copay is only about $22.00. Hopefully, it was not a mistake.
Take care,
I just had the Potter's MRI and i had my report back. I did not meet Dr. Potter but was told my doc could talk to her re: questions. I was initially informed by my insurance Dr. Potter is out of my network. However, my copay is only about $22.00. Hopefully, it was not a mistake.
Take care,
-
helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: DR Potter Fees
Welcome Janet 
Sorry, I have no info about the potter scan to answer your question.
I know that this scan is the best available but because many doctors do not find any imaging helpful, as this type of imaging is in its infancy, I would question if any scan is so absolutely necessary.
If money is not a problem please 'go for it' but just realise that many doctors do not recognise this as helpful. If nothing does show you have spent a lot of money and got no further forward. I honestly think that a good knowledgeable clinical examination can give you a PN diagnosis far better than a scan. The two together may be a bonus but not just the scan alone.
As Dr Antolak says on the attachment here http://www.pudendalhope.info/forum/view ... =23&t=3479 PN is quite easy to diagnose.
It is the second attachment down ics-glasgow-diagnosis PN.pdf
You may have explored all of this already of course, sorry if that is the case.
A Potter scan may give a better guide as to where a person has a problem with the nerve if that is in doubt. I would just hate people to spend a fortune thinking they would get definitive answers. Please let us know how you get on. Good luck.
Take care,
Helen
Sorry, I have no info about the potter scan to answer your question.
I know that this scan is the best available but because many doctors do not find any imaging helpful, as this type of imaging is in its infancy, I would question if any scan is so absolutely necessary.
If money is not a problem please 'go for it'
but just realise that many doctors do not recognise this as helpful. If nothing does show you have spent a lot of money and got no further forward. I honestly think that a good knowledgeable clinical examination can give you a PN diagnosis far better than a scan. The two together may be a bonus but not just the scan alone.As Dr Antolak says on the attachment here http://www.pudendalhope.info/forum/view ... =23&t=3479 PN is quite easy to diagnose.
It is the second attachment down ics-glasgow-diagnosis PN.pdf
You may have explored all of this already of course, sorry if that is the case.
A Potter scan may give a better guide as to where a person has a problem with the nerve if that is in doubt. I would just hate people to spend a fortune thinking they would get definitive answers. Please let us know how you get on. Good luck.
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: DR Potter Fees
Hi,
HSS is Dr. Potter's main location. I have now had two MRIs read by her. She reads the scans and writes the reports, but you do not get to meet with her. I believe that your docotr can contact her with questions though. That is just the way she operates. I'm not sure if thats how all radiologists work, but I know it takes a lot of time to read the scans and write the reports, so that might be why you cannot talk to her at the same time as you get the scan, she doesn't know the results yet. Just a thought.
Good luck,
Jackie
HSS is Dr. Potter's main location. I have now had two MRIs read by her. She reads the scans and writes the reports, but you do not get to meet with her. I believe that your docotr can contact her with questions though. That is just the way she operates. I'm not sure if thats how all radiologists work, but I know it takes a lot of time to read the scans and write the reports, so that might be why you cannot talk to her at the same time as you get the scan, she doesn't know the results yet. Just a thought.
Good luck,
Jackie
Started with vulva itching 2/11. Diagnosed as vulvodynia and then PN in 01/12. Progressed to sitting pain and constant burning. Received 4 nerve blocks with only temporary relief, did year of pelvic PT before being diagnosed with bilateral FAI and hip labral tears 7/12. Did orthopedic PT 1.5 years. 3/13 Arthroscopic hip surgery at HSS with Dr. Kelly. Take cymbalta and lyrica daily. About 97% better than worst point thanks to combo of surgery and meds. Yay!
Re: DR Potter Fees
Hi Janet,
I wouldnt be concerned about meeting Dr. Potter. Any x-ray, MRI, CT is performed by a technician as ordered by your physician and then read by the radiologist (Dr Potter). They are not paid to meet the patients, they are paid to look at and interpret the films. I've had many x-rays and MRIs (lots of wasted money) and never once met the Radiologist. I would suggest that you request a copy of the report for your records. Hope this helps. Best of luck.
Nancy
I wouldnt be concerned about meeting Dr. Potter. Any x-ray, MRI, CT is performed by a technician as ordered by your physician and then read by the radiologist (Dr Potter). They are not paid to meet the patients, they are paid to look at and interpret the films. I've had many x-rays and MRIs (lots of wasted money) and never once met the Radiologist. I would suggest that you request a copy of the report for your records. Hope this helps. Best of luck.
Nancy
Re: DR Potter Fees
I just wanted to let anyone know that if money is an issue with getting the Potter MRI, The Hospital for Special Surgery has a very generous financial assistance program that is easy to apply for. You can find the on-line application here
http://www.hss.edu/patient-financial-as ... notice.asp
http://www.hss.edu/patient-financial-as ... notice.asp
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: DR Potter Fees
Thanks for posting the link for financial assistance at HSS, Faith!
Kind regards,
Karyn
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: DR Potter Fees
One of my friends who had the Potter MRI purchased the CD of the MRI for $50. Radiologists don't typically prescribe treatments -- they just read the images. So I'm not sure how helpful it would be to meet with her anyway.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
-
janetrossi
- Posts: 10
- Joined: Mon Sep 24, 2012 1:13 am
Re: DR Potter Fees
You have a really, really good and really can recommend? Even away from N.Y. ....
tank's a lot.....
BUT 'A MY FRIEND, ABOUT 10 MONTHS AGO', MADE A DOCTOR WITH MRI POTTER AND SHE EXPLAINED THE RESULTS.
The same thing the last time, and also with other people with I have spoken.
And is recently that she does not explain more' MRI .
For me is very important because j haven't a referring physician in Italy.
(I have seen many doctors, they are very famoust for pudendal problems, but I have only made things worse)
My problem 'was caused by pudendal bloks made in Italy by the "Dr." Ezio Vincenti of Padua, he' s one of the many "famous" for pudendal neuropathy ...
I would like to understand what I really have ..... and maybe the doctor Potter she receives in private in his study .... maybe ...
Tank's to all the people that have write me.
Ciao, Janet
tank's a lot.....
BUT 'A MY FRIEND, ABOUT 10 MONTHS AGO', MADE A DOCTOR WITH MRI POTTER AND SHE EXPLAINED THE RESULTS.
The same thing the last time, and also with other people with I have spoken.
And is recently that she does not explain more' MRI .
For me is very important because j haven't a referring physician in Italy.
(I have seen many doctors, they are very famoust for pudendal problems, but I have only made things worse)
My problem 'was caused by pudendal bloks made in Italy by the "Dr." Ezio Vincenti of Padua, he' s one of the many "famous" for pudendal neuropathy ...
I would like to understand what I really have ..... and maybe the doctor Potter she receives in private in his study .... maybe ...
Tank's to all the people that have write me.
Ciao, Janet
-
jackmarknow
- Posts: 3
- Joined: Mon Jan 14, 2013 9:33 am