Weather

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Weather

Post by HerMajesty »

Dave, it was just one of the many pieces of data I came across back a couple of years ago when I was researching this (as I said I no longer have links): That what causes changes in pain levels with barometric pressure is not the average constant level of pressure you live at, it is pressure CHANGE. Your body acclimates to a permanent change in its surroundings: For example somebody visiting a high altitude region might become short of breath and easily get tired, but somebody who moves to a higher altitude will adapt to it by increasing the oxygen carrying capacity of the blood, until it is "their normal".
I did initially find some barometric pressure maps of the USA, thinking I could do better if I moved to an area with a higher average barometric pressure; until I did some more research and learned definitively that neuropathy responds only to pressure change, with no permanent response to a new average pressure. I don't know the mechanism / science behind it though. I didn't even get as far as you did in finding out the role of the inner ear in the process.
I do think folks with neuropathy are permanently better off in desert climates. I live in the Mojave Desert and even though it is relatively high altitude compared to many regions of the country, we seldom get rain / storm systems coming through and hence we don't have many dips to lower pressure. If you live in an area with a lot of rainy or overcast days, storm systems coming through, etc, you are going to have more of a roller coaster situation where the pressure will drop and exacerbate pain before coming back up to baseline.
Sorry that I don't have my references anymore but the info is out there.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: Weather

Post by Dave »

HerMajesty wrote:Dave, it was just one of the many pieces of data I came across back a couple of years ago when I was researching this (as I said I no longer have links): That what causes changes in pain levels with barometric pressure is not the average constant level of pressure you live at, it is pressure CHANGE. Your body acclimates to a permanent change in its surroundings: For example somebody visiting a high altitude region might become short of breath and easily get tired, but somebody who moves to a higher altitude will adapt to it by increasing the oxygen carrying capacity of the blood, until it is "their normal".
I did initially find some barometric pressure maps of the USA, thinking I could do better if I moved to an area with a higher average barometric pressure; until I did some more research and learned definitively that neuropathy responds only to pressure change, with no permanent response to a new average pressure. I don't know the mechanism / science behind it though. I didn't even get as far as you did in finding out the role of the inner ear in the process.
I do think folks with neuropathy are permanently better off in desert climates. I live in the Mojave Desert and even though it is relatively high altitude compared to many regions of the country, we seldom get rain / storm systems coming through and hence we don't have many dips to lower pressure. If you live in an area with a lot of rainy or overcast days, storm systems coming through, etc, you are going to have more of a roller coaster situation where the pressure will drop and exacerbate pain before coming back up to baseline.
Sorry that I don't have my references anymore but the info is out there.
Pack your bags and head for Waikiki:

http://www.wisegeek.com/what-areas-in-t ... hanges.htm
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: Weather

Post by calluna »

Such a useful thread! Thankyou for this. With the barometer in my hallway close to the bottom of the scale at the moment - stormy weather! - I now know why I've got a bit of a flare. I'd been wondering what I'd done to trigger it...

Waikiki sounds like a wonderful idea for us all.
Hoopgirl
Posts: 1
Joined: Wed Sep 26, 2012 12:25 am

Re: Weather

Post by Hoopgirl »

This definitely happens to me! Every fall, things start to worsen as the weather cools off. It's also noticeably worse on rainy days, even if it's just cool (instead of cold).
Julia
Posts: 50
Joined: Mon Aug 15, 2011 11:54 pm
Location: near Toronto, Canada

Re: Weather

Post by Julia »

Yes, I posted this same question about 1 year ago! I feel much worse on damp, overcast days. It is really noticeable. My pain goes from 4/10 to about 6 or 7/10. I am sorry that you all experience this too, but glad to know that I'm not imagining it!

Anyone have tips on what to do on days like this? Stay inside? Stay warm? Can anything be down to counteract the pressure?
Julia (Toronto) 31, female
Chronic pain since '09. Current symptoms: burning pain at left ischium when sitting, pelvic floor heaviness/tightness, cannot sleep on left side, pressure on bladder, pain worse with sitting/lifting anything heavy/pulling open doors, unable to wear tight pants, pain is intermittent; sometimes a dull ache, other times burning/pulling/pinching. Amitriptyline and ice helps. Diagnosed with labral hip tear 2014, considering surgery.
flyer28
Posts: 244
Joined: Fri Mar 25, 2011 11:29 am

Re: Weather

Post by flyer28 »

Same exprience here, cold, overcast, rainy days are worse than freezy winter days.
Sunny summer weather is the best.
Combination of autumn rainy wet days with a lot of mental stress, work duties etc. makes every November-December last 3 years hell for me.
Summer is always like new beginning, with a lot of improvement.
summer 2009 - episodic post ejaculatory pain,
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
Elmwood
Posts: 78
Joined: Sat Aug 06, 2011 5:15 pm
Location: Massachusetts USA

Re: Weather

Post by Elmwood »

Cold weather is worst for me but thats because my scrotal issues are worst when the scrotum is close to the body. I feel great on hot summer days when my scrotum is looser.

As for wet weather, I was always under the impression that people had worse pain (for such things like arthritis) due to the increased humidity
Scrotal pain and tingling started in 1999. Soreness after ejaculation. Occasional numbness in Scrotum. Some urinary frequency. Symptoms disappeared for 3 years in 07 and came back in 2010. Tingling and tickling in penis 2011. Pain in buttocks with sitting started in July of 2012. Not much success with PT. Tried the usual meds with some success, but didn't like the side effects. Dr. Potter MRI revealed pelvic floor varices. Both hips opperated on in 2013 for FAI. Some help with supplements.
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Weather

Post by janetm2 »

Elmwood wrote:Cold weather is worst for me but thats because my scrotal issues are worst when the scrotum is close to the body. I feel great on hot summer days when my scrotum is looser.

As for wet weather, I was always under the impression that people had worse pain (for such things like arthritis) due to the increased humidity
this is how I found out I had arthritis. A fews years ago we had one of those strings of hazy hot 100 degree plus temp and 100% humidity days weeks etc and I was eating oxycodone like crazy with no relief and it was athritis. I went to the doc who gave me the oxy for my chronic bunion pain he sent me for MRIs and arthritis set it from the operations I had on my bunions. The arthritis meds have helped calm that down but I still get pain on both cold and hot humid days.
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
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