Weather

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Weather

Post by Dave »

Has anyone noticed their neuropathic pain cyclng with weather like arthritis pain... getting worse as wet weather is about to arrive and better when the sun comes out?
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Weather

Post by Karyn »

I don't have that particular symptom, but I've heard of that happening to others. Not sure if it's neuropathic pain or joint pain.
Does this happen to you?
Best,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Weather

Post by HerMajesty »

Yes, it is due to barometric pressure - I also experience it with altitude changes or in a pressurized airplane cabin. High pressure is more neuropathy friendly than low pressure, and aside from the artificial high pressure of an airplane cabin, you get to higher pressures at lower altitudes (that is, by going down a mountain, not up), or by having lower humidity, such as on a clear sunny day vs. an overcast or rainy day.
To those of us that are pressure sensitive, what actually matters is change in pressure. That is, I went to Death Valley which is the lowest point in the USA and extremely dry, and i felt wonderful...but if I moved to Death Valley I wouldn't feel wonderful forever; I would start to feel like I had in my old home but then if I went anywhere else I would feel worse, since anywhere else has lower pressure.
Hyperbaric chambers are used in health care sometimes - spending time in one puts you into a high pressure environment. Someone had suggested to me once that paying for hourly sessions in a hyperbaric chamber might over time have a therapeutic effect; but i don't know if there is any validity to that claim at all: I mean, yes I know from other experiences in high pressure that I would feel better in the chamber, but I do not know that I would feel any better in between sessions.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: Weather

Post by Dave »

I experience this too. Does anyone know why this effect occurs? Why does barometric pressure affect neuropathic pain? And is there a way to take advantage of this?
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Weather

Post by janetm2 »

I am all in on this one. I of course already had the effects to my chronic and arthritic foot pain and now the new pelvic pain. I just stayed home yesterday to avoid or at least hope to keep the pain down from the rain all day with some buckets worth. Today is dry and sunny as well as cooler (the 90 degree weather is finally broken). The summer was many humid days and so glad that ended!
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: Weather

Post by Dave »

HerMajesty wrote:...but if I moved to Death Valley I wouldn't feel wonderful forever; I would start to feel like I had in my old home but then if I went anywhere else I would feel worse, since anywhere else has lower pressure.
HM, I believe you, but how do you know all this about the effects of barometric pressure on neuropathic pain? Where did you learn about it?

Dave
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Weather

Post by HerMajesty »

here is an abstract on an actual study on the subject: http://www.ncbi.nlm.nih.gov/pubmed/21888946 , but in general if you google "barometric pressure neuropathy", you will get a ton of hits, it is a pretty well known phenomenon. I am not sure where I heard about it at 1st, but I did a lot of internet research, both on how barometric pressure effects neuropathy and on how to predict whether barometric pressure will be higher or lower under various conditions. I think I might have left some of the most interesting stuff in "favorites" on my other computer, so if I never erased them I will pop back up and post some links, and if I don't it's because I did erase it.
I heard about the hyperbaric chamber therapy from a clinical hypnotherapist who was totally sold on the idea that it has long term therapeutic value. She knows a Doctor in my city who owns a chamber and does hyperbaric therapy: It is one of those things they claim helps a multitude of ailments, so basically anyone who coughs up the $$ can have some sessions in the chamber and see if it helps. I didn't do it, which should give you some idea of my skepticism. But I guess it comes down to finances and whether one is willing to pay to try out something unproven. I think it was about $100 per session, not sure how long the sessions were.
edit: I did look, sorry no good barometric pressure stuff left in favorites :( But the info is very accessible online if you want to confirm anything I posted.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: Weather

Post by Dave »

It looks like this research group at Nagoya University has done a lot of work on this subject.  They were able to show that the way the inner ear senses barometric pressure affects how the nervous system senses or modulates pain.

Definitely gets you thinking...
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: Weather

Post by Dave »

HerMajesty wrote: I went to Death Valley which is the lowest point in the USA and extremely dry, and i felt wonderful...but if I moved to Death Valley I wouldn't feel wonderful forever; I would start to feel like I had in my old home but then if I went anywhere else I would feel worse, since anywhere else has lower pressure.
Hi HM, how do you know that you would eventually adjust to the high barometric pressure of Death Valley rather than feel better all the time?
Jackson
Posts: 90
Joined: Wed Oct 12, 2011 1:58 pm

Re: Weather

Post by Jackson »

Hi,

If you do a search for Fibromyalgia you'll come across numerous discussions on the effects of weather, including barometric pressure. Some of it is contradictory though. Can be a very disabling and painful condition.

Cheers, Jackson.
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