Well Spouse Association

Here is a place for social chats with special attention to support and non medical discussions. We need a place to chill out, where we can distract from our pain and enjoy lighter moments, share a joke or funny moment with others.
Post Reply
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Well Spouse Association

Post by Dave »

FYI,

The Well Spouse Association is a support organization for the spouses of people with disabilities:

http://www.wellspouse.org/contact-us-su ... -contacts/

Their motto is: WHEN ONE IS SICK... TWO NEED HELP
Top
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Well Spouse Association

Post by HerMajesty »

Great resource, thanks!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Well Spouse Association

Post by Karyn »

Great job, Dave!
I really like their motto:
Dave wrote:WHEN ONE IS SICK... TWO NEED HELP
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
Post Reply

Return to “SOCIAL DISCUSSIONS & FUN”