Hello all,
So sorry for the long delay in the response. It's been a very crazy end of summer for me.
I am 5-6 sessions in with PT. I felt a tremendous amount of nerve pain relief, after the 4th session. This was the first time (other than initial exam) that the did lots of internal trigger point release and myofascial (sp) work. It was glorious. But in that period between that session and the one the week after, I started to have debilitating lower back/hip pain in the place of the nerve pain. It was more tolerable than the burning/stabbing sensations in my vulva & urethra, but very challenging to care for my two young sons with all that going on. I went back for another session and she had me reach down to touch my toes a few times before starting another session.....well, the nerve pain came back that night and has been intermittent since then. Not as bad as it was before starting PT, but not great. I still also have this intermittent hip/back pain as well. It's been 2 weeks since last PT because she went on vacation, and it's all gotten worse since then. New things have developed: Stabbing inner thigh/groin area pain and LOTS of popping/cracking noises in my left hip (all my pain is on my left side) when I walk or sit or do pretty much anything. Bending, sitting for long periods and laying on my back are all solid actions that always bring on pain - where as before, it was hard to tell what exactly would trigger it. It will still come and go with no rythme or reason, but those things I've been able to spot for sure.
I ask her what she thinks is wrong with me at every single sessions. She always just pauses and says that she thinks there are many things at play, and that it's hard to determine what exactly it is, as she thinks there are mutliple layers of fuckery going on in my pelvis. It's also a chicken-or-the-egg scenario. Did IC trigger additional pain/muscle problems or did something like PN cause IC or muscle pain blah blah blah blah.
But on another note, had a 3T pelvic MRI last Friday. Don't know results yet. It was NOT the Potter (Boooooo) but as broke as we are, I'm lucky I was able to get one at all. Flying 6 hours to NY for a $3000 scan is out of the question right now.
So I ask you fine people: Should I keep on with it? PT that is? The "homework" I do doesn't seem to really put a dent in the pain and sometimes it even seems to make it worse. The woman I am seeing is super PN knowledgable and studied with the PN PTS in San Fran w/the PN dr specialist there. So she knows her stuff..
I am wondering - if it is indeed PN, are my symptoms indicative of entrapment or neuralgia?
I don't ask for much, do I.
Have a lovely evening and I hope you are all feeling well, if not totally pain free tonight. Thanks again.
Not officially diagnosed. Pain began following MANY typical pn causing activities.
Intermittent IC type pain started 5/20/2012
Urologist said IC - did diet, meds etc with no improvement
Constant pn type pain and burning started 7/1/2012
Gp rx gabapentin & lidocaine, no improvement
Started PT 7/23/2012. pelvic MRI that showed osteitis pubis. PT miofascial on inguinal & psoas, pn pain greatly reduced. hip joint/lumbar pain started. 12/20/2012 - Hip MRA shows labral damage.