About a month ago I noticed I was having a lot of pain when driving or sitting. The pain is in my right testicle and goes down into my buttocks area. At times the pain seemed unbearable. I went to a doctor (my regular doctor was not in town at this time) and he thought it was Epididmitis. A few days later I went back and told him the antibiotics he had given me were not working. He then told me that it was not Epididmitis but instead it was a hernia and sent me to a specialist. I went to the specialist and he said that it was not a hernia but was a kidney stone and sent me for a urinalysis. At this time I had researched and found your site. I had printed out pages and presented them to the specialist but he believed that I should check for the kidney stone, which I had a CT scan and it showed negative for any kidney stones. I am still in pain and cannot seem to find any relief. I go back to my doctor (who was back in town). During this visit I showed my doctor that my right testicle was swollen. She then shows me where my limp-nodes were swollen in my growing. She said this is an in infection and gave me antibiotics and pain pills. I took the meds, swelling went down, but the pain & discomfort from sitting was very much still there. I went back to my doctor and I was then sent to a Urologist. I had a sonogram done, which he told me did not show anything was wrong. I asked the doctor to look at the papers I printed from this forum and asked for a referral to the Neurologist that was listed in Texas, which my doctor agreed to do. My doctor said she did was not sure that my conditions were PN/PNE because of the swelling I had. So, this brings me to my question, does anyone know of any testicle swelling that is associated with PN/PNE or can someone provide some input on this.
I am a 41 yoa male and this degree of pain and discomfort is not something I am use to. During this process I have had all types of blood test, prostate test, hernia test (numerous), and am trying to find out as much information as I can. I am very thankful that I found this forum as it has provided me with a ton of information. I will be seeing the Neurologist in 1-1/2 weeks and will see what he says.
Thanks,
Question from new member
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Question from new member
Hi krittermacc,
Glad you have found this site and have benefited from the info here already.
In answer to your questions, I think that you would need to establish what kind of pain you were experiencing and establish if it was typical nerve pain (or not)
I think you have already looked at the home pages to see if your symptoms do match? typical nerve pain is quite different to 'normal' pain in that it often takes on different 'roles', itching, burning, stabbing, numbing, fluttering, pins and needles. . . . .it almost needs it's very own equity card!!! if you have it you will know.
You do sound like a typical PN sufferer in that you have been 'round the houses' and still have no actual diagnosis but I have no idea about the swelling, sorry. It's not something that is normally reported.
There may have been more than one problem at the same time of course, just to confuse the issue. At least it was something visible,most of us don't have anything to actually see. Maybe someone else can say something more positive and put everything together for you.
Do you have some of the typical nerve pain descriptors?
I hope that you get some answers to allow you targeted treatment.
Take care,
Helen
Glad you have found this site and have benefited from the info here already.
In answer to your questions, I think that you would need to establish what kind of pain you were experiencing and establish if it was typical nerve pain (or not)I think you have already looked at the home pages
to see if your symptoms do match? typical nerve pain is quite different to 'normal' pain in that it often takes on different 'roles', itching, burning, stabbing, numbing, fluttering, pins and needles. . . . .it almost needs it's very own equity card!!! if you have it you will know.You do sound like a typical PN sufferer in that you have been 'round the houses' and still have no actual diagnosis but I have no idea about the swelling, sorry. It's not something that is normally reported.
There may have been more than one problem at the same time of course, just to confuse the issue. At least it was something visible,most of us don't have anything to actually see. Maybe someone else can say something more positive and put everything together for you.
Do you have some of the typical nerve pain descriptors?
I hope that you get some answers to allow you targeted treatment.
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Question from new member
Sorry, for the late reply-- I've been out of town and got behind on reading posts.
I agree with Helen that PNE is not typically accompanied by swelling but that's not to say it couldn't be as there are often more things going on than just PNE. If there are blood vessels affected in addition to nerves that could possibly explain the swelling and inflammation. Antibiotics can decrease inflammation even if there is no infection.
You may want to try some further diagnostics including an evaluation by a physical therapist trained to treat people with pudendal neuralgia. You can read the diagnostics page on the website for further ideas. A PT can press along the course of the pudendal nerve via the rectum to see if it is tender/painful and they can also evaluate the pelvic floor muscles and any other musculoskeletal anomalies that could be contributing to your problem.
Violet
I agree with Helen that PNE is not typically accompanied by swelling but that's not to say it couldn't be as there are often more things going on than just PNE. If there are blood vessels affected in addition to nerves that could possibly explain the swelling and inflammation. Antibiotics can decrease inflammation even if there is no infection.
You may want to try some further diagnostics including an evaluation by a physical therapist trained to treat people with pudendal neuralgia. You can read the diagnostics page on the website for further ideas. A PT can press along the course of the pudendal nerve via the rectum to see if it is tender/painful and they can also evaluate the pelvic floor muscles and any other musculoskeletal anomalies that could be contributing to your problem.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.