Does anyone know if there are any celebrities with pudendal neuralgia?
I know there are a bunch of other celebs with other chronic pain diseases...
Most famous person w/ PN?
Re: Most famous person w/ PN?
Dave,
So far we havent managed to find a celebrity with PN/PNE. The condition would be taken far more seriously in many places if it were highlighted by a celeb. Not that I would wish PN on anyone, but the media coverage would definitely bring a greater awareness aobut our condition and the treatments offered.
So far we havent managed to find a celebrity with PN/PNE. The condition would be taken far more seriously in many places if it were highlighted by a celeb. Not that I would wish PN on anyone, but the media coverage would definitely bring a greater awareness aobut our condition and the treatments offered.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Most famous person w/ PN?
Amanda wrote:Dave,
So far we havent managed to find a celebrity with PN/PNE. The condition would be taken far more seriously in many places if it were highlighted by a celeb. Not that I would wish PN on anyone, but the media coverage would definitely bring a greater awareness aobut our condition and the treatments offered.
What about any related chronic pain diseases? The bigger the group, the more noise we can make!
Re: Most famous person w/ PN?
JFK allegedly had pelvic pain (his "low back pain") and was treated by Dr.Travell, the physician that studied myofascial pain and trigger points.
Glenn Gould the famous pianist suffered all his adult life from pelvic pain.
John Cleese of Monthy Python fame suffers from Prostatitis (which is often a catch all term for pelvic pain).
Former trainer for The Biggest Loser, Jillian Michaels suffers from endometriosis.
Glenn Gould the famous pianist suffered all his adult life from pelvic pain.
John Cleese of Monthy Python fame suffers from Prostatitis (which is often a catch all term for pelvic pain).
Former trainer for The Biggest Loser, Jillian Michaels suffers from endometriosis.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
Re: Most famous person w/ PN?
There are also celebrities with other chronic pain diseases like RSD and fibromyalgia. ( Pain drugs are often developed with the notion that they can affect wide range of chronic pain diseases.)
Here is an example:
http://www.prevention.com/health/health ... ronic-pain
Here is an example:
http://www.prevention.com/health/health ... ronic-pain
Re: Most famous person w/ PN?
Hi all,
We need a new non-addictive therapy for chronic pain! Tell your Congressman! Tell your Senator! Write to President Obama!
According to the Intitute of Medicine, over 100 million Americans suffer from chronic pain, and chronic pain costs the US up to $635 million (4% of the GDP)!
See links for more info about chronic pain in America: http://www.pudendalhope.info/forum/view ... =23&t=3415
Even Steven Tyler suffers from chronic pain and was in rehab for pain killer addiction. He's as famous as anyone.
http://www.people.com/people/tablet/art ... .html#news
We need a new non-addictive therapy for chronic pain! Tell your Congressman! Tell your Senator! Write to President Obama!
According to the Intitute of Medicine, over 100 million Americans suffer from chronic pain, and chronic pain costs the US up to $635 million (4% of the GDP)!
See links for more info about chronic pain in America: http://www.pudendalhope.info/forum/view ... =23&t=3415
Even Steven Tyler suffers from chronic pain and was in rehab for pain killer addiction. He's as famous as anyone.
http://www.people.com/people/tablet/art ... .html#news
Re: Most famous person w/ PN?
I joined a facebook group here in NZ, 'chronic pain awareness' the lady who runs it has fibromyalgia, and started a yearly art competition and 'pain awareness month' about 4 years ago to raise awareness of chronic pain conditions.
www.painmonth.co.nz
She was recently on national TV explaining about it in conjunction with a release of a report (first of its kind in New Zealand) on chronic pain and the effects on the economy and peoples lives.
Anyway I quit the group, because my input and effort ultimately led no benefit to me.
www.painmonth.co.nz
She was recently on national TV explaining about it in conjunction with a release of a report (first of its kind in New Zealand) on chronic pain and the effects on the economy and peoples lives.
Anyway I quit the group, because my input and effort ultimately led no benefit to me.
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.