migraine

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
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zuhinaax
Posts: 1
Joined: Sat Apr 28, 2012 10:35 am

migraine

Post by zuhinaax »

What is a good migraine medication that is comparable to Topamax, without the side effects? I had been taking Topamax for migraines. I was on 400mg a day and it helped really well, but recently found I have a kidney stone due to using Topamax so I am trying to find a different med. I can take for it. For those of you that don't know, Topamax is used to prevent migraines, not to help with the pain. If anyone has personal experience I would prefer your answer. I don't want answers like imitrex, maxalt, zomig, as these are to treat the pain after you have gotten a migraine. I want an answer for a med to prevent the migraines. Thanks in advance.
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Last edited by zuhinaax on Sun May 06, 2012 9:01 am, edited 1 time in total.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: migraine

Post by HerMajesty »

I can't give you exactly the answer that you want (a med that prevents migraines), but I have been very successful at warding them off: 1st migraines as a teen literally left me screaming and puking, but they have been nothing but a slight annoyance for the past 20 years or so since I learned to self manage.
The important thing is to be very alert to see if you can identify any signs at all of impending migraines. My signs are extreme tiredness and intermittant mild shooting pains in my forehead. I also sometimes get painless optical migraines before I get any pain. As long as I can ID the warning signs, I can prevent the pain without even resorting to and RX med. I use a combo of 5 advil (equivalent of 1,000mg motrin), a strong dose of caffeine in any form (it is in headache pills such as Exedrin, in No Doz, or use shots of espresso),and sometimes if the pain is developing quickly I will use a strong menthol product on my forehead such as Tiger Balm, Ben Gay, or the sticky "migraine patches" which are made to stay on your forehead and keep delivering menthol.
It can be as simple as that if you can identify early warning signs - I hope you also have some identifyable warning signs and that the simple OTC approach works as well for you as it does for me.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Emily B
Posts: 186
Joined: Sat Sep 18, 2010 1:21 am

Re: migraine

Post by Emily B »

Zomig, a vasoconstrictor, helps me with my migraines.

Emily B.
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Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: migraine

Post by Violet M »

If your migraines are allergy related you might want to be allergy tested and take allergy injections. Allergy shots significantly improved migraines in one of my family members.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Dave
Posts: 142
Joined: Fri Sep 23, 2011 3:43 pm

Re: migraine

Post by Dave »

Is there a relationship between migraines and PN?

I get cluster headaches, which is a cousin of migraines and is more common in men.

Dave
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: migraine

Post by HerMajesty »

Dave, I think there can be a relationship based on the cause of your PN. My 2 underlying PN factors were SIJD and tarlov cysts. SIJD can cause headache because misalignment of the pelvis often causes a compensatory joint dysfunction in the neck. Tarlov cysts can cause headache because they can change cerebrospinal fluid pressure. Not sure about other peoples' causes...I wouldn't think that something like a scar tissue entrapment al alcock's canal from cycling would have a mechanism to cause headaches...but on the other hand anyone with chronic pain has autonomic dominance (constant overactivity of the autonomic, or sympathetic, nervous system which is your "fight or flight" response)...so maybe any kind of PN or for that matter any chronic pain could increase headaches.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Aleclucy11
Posts: 23
Joined: Sun Feb 26, 2012 7:32 pm
Location: Maryland, USA

Re: migraine

Post by Aleclucy11 »

Hi Hermajesty, how are you doing these days? We corresponded well over a year ago, as I was trying to wrap my brain around these little Tarlov cysts appearing on my MRI. Just as I was seriously preparing to go to Dr. Kirk Andrew. Dr. Andrew acknowledged the TC and said he would rather not treat me and I should see about them. Well, I traveled to Dallas, saw Dr. F. He determined he couldn't tell for sure and recommended I see Dr. Long for the proper blocks to help determine the likelihood that the cysts are the cause. Well, did that and the blocks seemed positive, however he wants me to repeat them, says it increases the level of accuracy. ( dr. Long). And then since my pudendal nerve is where i feel the symptoms, long sent me to a Neurourologist to get pudendal blocks, ugh!!

Just wondering how u r. I'm thinking about the surgery.

Thanks,
Kara
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