I wrote a dozen poems today, tomorrow hubby and I are going to a 'poetry in the garden' event where public can perform.
I think they ended up a bit too private to say in public, but I'm ok to share here.
TENS
I'm zapping myself again
They say you can't feel two
different pains at the same time.
Thats a lie.
Mixed messages.
One from entrapment.
One from an electronic dial.
The only thing in common is that they are both battery operated.
I can choose to switch one off anytime.
But the other is a continuous assault,
only alleviated by the surgeons knife after a battery of tests.
They wont tell me where the switch is, they don't know themselves.
The current continues to flow, zapping the life out of me.
UNEMPLOYED
Such a great job spawned an early retirement.
I do not have it anymore, I gave it up because I could not work for it anymore.
My body retired and took a redundancy with no payout.
After all my passionate investment.
I thought I was wealthy... gliding, moving, shaking.
"Your services are no longer required, we have to let you go.
Do not try to hold on, it will cause you too much pain."
"You will never get your job back,
The only position you will fill now is that of a hunched cripple."
Ten minutes to get off the sofa.
The daily trip to the letterbox, peeing in a bag.
The only consolation is that my mind gets to fathom the depths of my loss on the way to Nirvana.
Pudendal Poetry
Pudendal Poetry
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
Re: Pudendal Poetry
Thank you for sharing your poems with us, Kia. They were very moving. I agree that the general public may not understand the content, but please keep up your good work!
It must feel some what comforting to take such a painful situation (on so many levels!) and turn it into something beautiful and constructive!
Warm regards,
Karyn
It must feel some what comforting to take such a painful situation (on so many levels!) and turn it into something beautiful and constructive!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Pudendal Poetry
Kia, that is some excellent writing.
Please don't feel like you will be unemployed forever though. There was a time I never dreamed I would be able to go back to work or to walk for 3 miles again. But now I can. I read your other report about your docs finally agreeing that you are not a head case. Hang in there and keep fighting.
Hugs,
Violet
Please don't feel like you will be unemployed forever though. There was a time I never dreamed I would be able to go back to work or to walk for 3 miles again. But now I can. I read your other report about your docs finally agreeing that you are not a head case. Hang in there and keep fighting.
Hugs,
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
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- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Pudendal Poetry
Thanks Kia, insightful writing with raw angst, telling it like it is.
Helen
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.