New here, in pain need help

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: New here, in pain need help

Post by carolynm »

Tim,

Just wanted to offer a warm welcome. We have all been on journeys to find answers and treatment. Once you start poking around on the forums you will find more and more information. Your symptoms sound suspiciously of PN, and weighlifting is a common source of this neuralgia.

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
ilovebuddy
Posts: 8
Joined: Thu Apr 19, 2012 2:16 am

Re: New here, in pain need help

Post by ilovebuddy »

Violet,

Once again, thank you for all the information. I am still waiting on my neurologist to send over the script for me to see the occupational therapist. She said she specializes in pelvic floor conditions and is knowledgable of PN, so i think this is at least a good start. I will keep you all posted on what she says and see if you all think it makes sense. Oh i almost forgot!!! the gabapentin seems to finally be working. I am in much less pain and able to function like a normal person for the most part. I can go to work and out to eat, but if i push it too hard my body lets me know. Anyway, just wanted to share the good news. i am not completely pain free, but i am just happy to have some relief from symptoms.

-Tim
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New here, in pain need help

Post by helenlegs 11 »

Always good to hear something positive Tim. Hope the occupational therapist works out for you too, fingers crossed.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Violet M
Posts: 6778
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: New here, in pain need help

Post by Violet M »

Hi Tim,

I'm glad the gabapentin is helping you. Just be careful with the therapy. I saw an OT before I knew my diagnosis and I think the stretches she recommended pushed me over the edge into full-blown PNE. Let us know how it goes for you. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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