Here is a place for social chats with special attention to support and non medical discussions. We need a place to chill out, where we can distract from our pain and enjoy lighter moments, share a joke or funny moment with others.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Bobby wrote:Give trigger point release physical therapy a try... what have ya got to lose. It's brought me much success in only the 4 months I have been following the protocol.
Hope ya feel better
How do I find someone who can do that?
1985 diagnosed fibro; 1990 hysterectomy with bladder suspension;2000 T12 (Maigne ) syndrome; urticaria and angioedema; sjogrens syndrome; adhesions; pelvic pain; two herniated discs in neck.
Here is a list of pelvic physio's Poppy. http://www.pelvicphysiotherapy.com/manual-therapists
I have no idea if any of them can treat SIJD problems too, although I have heard that Dr Ruth Jones (Hampshire?) does look at the whole pelvis and lower spine (maybe more??) to try and find the problem.
Hope something helps soon
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Thank you for that link. Sadly there isn't anyone remotely within reach for me. Tried a local physio last week who advertises pelvic floor work but she wouldn't touch me and thought it was a spinal problem and she wasn't qualified to treat me. I think she deals mainly with pelvic floor exercises for incontinence.
1985 diagnosed fibro; 1990 hysterectomy with bladder suspension;2000 T12 (Maigne ) syndrome; urticaria and angioedema; sjogrens syndrome; adhesions; pelvic pain; two herniated discs in neck.
No, there is no one near me either, Hurumph!! although I know that Maeve Whelan has held seminars and more and more physio's are taking up the pelvic challenge . There is also a couple of pelvic floor exercises on her site which can only be good practice in general, as they aren't too tricky.
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
. There is also a couple of pelvic floor exercises on her site which can only be good practice in general, as they aren't too tricky.