painful colonoscopies/sigmoidoscopies

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
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Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

painful colonoscopies/sigmoidoscopies

Post by Lernica »

Please advise if this applies to you. I'm trying to use my experience with painful scopes to help me diagnose my remaining pain symptoms.
The pain during my scopes was severe burning and cramping, reducing me to tears once, even with full sedation.

Please post even if your scopes were not painful while you had PN, as that would help me out too.

Thank you in advance!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: painful colonoscopies/sigmoidoscopies

Post by calluna »

Hi Lernica - I've had two of these now, one before and one after the mesh surgery that started the PN. I was a bit apprehensive about having one when I had PN, but it turned out to be ok. Uncomfortable yes, but not too bad really. I had sedation for the first, but not for the second.

I am sorry it was so painful for you.
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: painful colonoscopies/sigmoidoscopies

Post by Karyn »

Lernica wrote: I'm trying to use my experience with painful scopes to help me diagnose my remaining pain symptoms.
Well, for me ... it was definitely the PN. It was one of my first sypmtoms to subside after the surgery. I was completely knocked out during the colonoscopy and while the result came back with no masses or cancer, SEVERE sigmoid spasm was recorded. I know "spasm" means clenched/contracted, but my signmoid colon would actually throb and the spasms were more clonic in nature (rapid alternating contractions and relaxation). Almost like it was vibrating. Quite a disturbing feeling! Frequently experienced debilitating electric shocks straight up the poop shoot, too. I haven't had any rectal bleeding since the surgery either, which used to be a common occurance.
Lernica, if I'm remembering correctly, you've had several of these scopes done. How come?
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: painful colonoscopies/sigmoidoscopies

Post by Lernica »

Karyn wrote: Lernica, if I'm remembering correctly, you've had several of these scopes done. How come?
It's standard pre-op procedure for endometriosis patients with bowel symptoms. I've had five pelvic surgeries for endometriosis (yeah, lucky me). Because the last surgery was a hysterectomy, hopefully the endo is gone for good. You can see from my history why I'm very surgery-averse.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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