Ditto your comments, PS. Here's where I'd like to post about a lovely incident involving Fall Girl and me.
Fall Girl happens to live in a town where the train from Toronto to Cornwall stops. Before my last trip to Cornwall, she told me to watch the train platform in her town carefully. When I did, there she was, shivering in the winter weather, and holding up a "HOPE" sign! We waved to each other through the window, gave each other "thumbs up" signs and air hugs, and shed a few tears. It was very emotional. Amazing how the internet can bring people together from all around the world. How could we have managed without it?
Dr Dellon
Re: Emotional support
Last edited by Lernica on Tue Jan 31, 2012 7:09 am, edited 1 time in total.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Dr Dellon
Lernica, your post brought tears to my eyes! This forum has brought a wonderful connection to us all.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Pelvis Stressly
- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: Dr Dellon
Same! Beautiful & touching story ladiesnyt wrote:Lernica, your post brought tears to my eyes!
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Biker George
- Posts: 23
- Joined: Wed Sep 29, 2010 10:35 pm
Re: Dr Dellon
Hang in there, Pelvis Stressly. I'm pulling for you.
Re: Dr Dellon
I am also pulling for you, PS. If you hadn't found Dr. Potter for us, I doubt that I would have convinced my HMO to approve any treatments for me at all. Her report and credentials have been invaluable and your contributions to HOPE are greatly appreciated. Hoping you see some improvement in the days ahead. Thank you.
Don
Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
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Pelvis Stressly
- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: Dr Dellon
Thank you kindly gentlemen!
Re: Emotional support
This is so much better than any movie. You are all making me cry but it's a happy kind of crying.Lernica wrote:Ditto your comments, PS. Here's where I'd like to post about a lovely incident involving Fall Girl and me.
Fall Girl happens to live in a town where the train from Toronto to Cornwall stops. Before my last trip to Cornwall, she told me to watch the train platform in her town carefully. When I did, there she was, shivering in the winter weather, and holding up a "HOPE" sign! We waved to each other through the window, gave each other "thumbs up" signs and air hugs, and shed a few tears. It was very emotional. Amazing how the internet can bring people together from all around the world. How could we have managed without it?
I'm pulling for you too, P.S.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Pelvis Stressly
- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: Dr Dellon
You don't even have to tell me that Violet, I already know! You've been pulling for me ever since I first showed up on pudendal.info years ago & you took the time to answer every single newbie question I had (& there were a lot of them!). Just like you do for everyone who manages to find their way here, desperate & looking for help. Thanks for always being available ladyViolet M wrote:I'm pulling for you too, P.S.
Re: Dr Dellon
Amen to that, PelvisStressly! Thank you, Violet, for hanging in for us for so long and providing us with your wisdom and grace.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Dr Dellon
You're welcome -- it's the least I can do. Just want you all to get well 
and to at least know someone cares about you as you are going through this horrendous illness.
and to at least know someone cares about you as you are going through this horrendous illness.PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.