Hello,
I'm just curious to hear from the more "seasoned" PN patients what their take on neural cross talk is.
I have been getting these electric zaps up the middle of my buttocks. Does this relate to the PUDENDAL or the SCIATIC or could this all be just the cross talk? I have a suspected left side entrapment so why these shocks on both sides?
Thanks!
What exactly is NEURAL CROSS TALK?
What exactly is NEURAL CROSS TALK?
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Re: What exactly is NEURAL CROSS TALK?
I'll be interested to hear this too.
I have left sided damage to the pudendal nerve - we know this because when I woke up after pelvic reconstruction surgery, I had a big numb area on the left side with a very clear delineating edge down the centre. Basically the whole of the left sided area innervated by the pudendal nerve was numb, when the feeling came back over the next few weeks, it came back as pain.
I now get pain on both sides - sometimes it is just on the left, sometimes just on the right, sometimes both sides at the same time. I've been told that my right sided pain is due to cross-talk between the nerves.
My 'electric zaps' - good description, A's mummy! - tend to go down the inside of the leg to the ankle, usually, although I do sometimes get them as you describe in the buttocks, but they feel as if they are running down towards the leg rather than up. I don't think I've ever had zaps on both sides at the same time, though.
I have left sided damage to the pudendal nerve - we know this because when I woke up after pelvic reconstruction surgery, I had a big numb area on the left side with a very clear delineating edge down the centre. Basically the whole of the left sided area innervated by the pudendal nerve was numb, when the feeling came back over the next few weeks, it came back as pain.
I now get pain on both sides - sometimes it is just on the left, sometimes just on the right, sometimes both sides at the same time. I've been told that my right sided pain is due to cross-talk between the nerves.
My 'electric zaps' - good description, A's mummy! - tend to go down the inside of the leg to the ankle, usually, although I do sometimes get them as you describe in the buttocks, but they feel as if they are running down towards the leg rather than up. I don't think I've ever had zaps on both sides at the same time, though.
Re: What exactly is NEURAL CROSS TALK?
Cross talk can happen pretty much whenever and where ever it wants.
Some nerves may be entrapped or damaged and the pain will radiate (cross talk) to other nerves in the body.
For me it took a couple years to develop.
I had both Pudendal entrapments and a left obturator entrapment.
Cross talk made my entire legs go numb and I would fall. Other times it would feel like the bones in my legs were covered in spikes and they were spinning around all day.
It seems you have had pelvic issues for a few years so cross talk could be one of your symptoms.
I'm not a medical person so I have no idea how to prove it, but it is a definite possibility.
Good luck
Kathy
Some nerves may be entrapped or damaged and the pain will radiate (cross talk) to other nerves in the body.
For me it took a couple years to develop.
I had both Pudendal entrapments and a left obturator entrapment.
Cross talk made my entire legs go numb and I would fall. Other times it would feel like the bones in my legs were covered in spikes and they were spinning around all day.
It seems you have had pelvic issues for a few years so cross talk could be one of your symptoms.
I'm not a medical person so I have no idea how to prove it, but it is a definite possibility.
Good luck
Kathy
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.