PN, PNE and IC

[kat]

My IC symptoms were cured (which some don't like when I use that word because I have IC I just no longer have any symptoms so I consider my IC cured) when my PNE was surgically fixed and with over a year of many different PT treatments and a special diet.

Do you think there is a connection between IC and PN and PNE?
Do you think people with IC actually have pudendal nerve damage of entrapments since those nerves run along the bladder?

I don't get why my IC was cured when my nerves were fixed unless there was a connection. I feel like docs should step up and suggest the pudendal nerves get looked at and treated to see if that cures others' IC symptoms.

Is that making sense?
Let me know what you think?

Loves

Kat

[helenlegs 11]

I have never had IC kat, very pleased to hear that your symptoms have gone I can't comment personally.
However,I did hear Dr Hibner say that if a patient had been diagnosed with IC and had the treatment, which didn't work, if they still had the problem years (10 years for 1 lady) then the patient had PN and not IC ? ? I have heard that the symptoms can be very similar and many people get an IC diagnosis as that is the more easily recognised problem.

[kat]

I completely agree with Hibner. I think IC people are not getting better because they have nerve damage that isn't being treated. That's why I asked. I wished IC docs and sufferers would look deeper for a cure and not give up. I feel bad that IC sufferers trust docs instead of fighting to figure out the cause of the pain and not just trying to cover up symptoms with meds.

[kathyd]

Hi Kat and Helen and everyone,
Just chiming in that I firmly believe that IC and PNE area connected, and that many people are mistakenly diagnosed with IC, when what they really have is nerve driven.
I tried many treatments for my bladder/PFD without relief. About 2 yearrs or so into this ordeal the sitting pain developed.
WE know our bodies. I can feel the restriction in my body when I try to pee..This is how my problems began,,, an inablity to feel empty after urinating,
I hope that we will get some answers soon. as the doctors learn more I pray they will recognize this connection.
Ksthy

[deedeecmt]

i was dx,d with ic in 96..had several tessts even ..in 2000 had my bladder removed and still in chronic pain 11 yrs later..nerve ent r nerve dammage was never even looked into..i had never heard of it myself..the one good thing is all the imfo ive learned thru the yrs to mayb help some poor patient with ic thinking giving up their bladder is worth being pain free...but not!!

[Hallows]

SO INTERESTING!!

I'm in diagnosis stages..STILL. My uro/gyno who did my cysto didn't think it's IC more nerve.
Who knows


I hope my new urologist knows about PN, PNE.
What type of surgery have you had? I'm new to PN (not diagnosed, but it is a possibility)