PNE vs. PN diagnosis

[Faith]

I don't know where to ask this question. So I just decided to post it here. How is a true entrapment diagnosed vs. just neuralgia? I can't seem to figure this out no matter how much I read.

[Violet M]

Faith, this is one of the most frequently asked questions about PN/PNE.

If you want the scientific explanation you can read the Nantes Criteria article for determining if the neuralgia is caused by an entrapment. http://pudendalhope.org/sites/default/f ... iteria.pdf

There isn't a 100% guaranteed way of knowing for sure, especially before surgery. I actually don't agree with everything in this article because I didn't quite match their criteria and it turns out I was entrapped. Dr. Hollis Potter in NYC is doing the 3T MRI now with some special imaging techniques and may be able to locate an entrapment pre-surgery but we don't have confirmation from the surgeons yet that her diagnostic reports are accurate.

[Celeste]

To further complicate things, you might have PN pain and be entrapped, and have surgery, but not get relief. This does happen. It's one of the biggest questions we have to answer. I don't know if the answer is that the nerve has permanent damage, or if something else is at play. Some think the nervous system can be permanently changed, others think it can be rebooted. But we do know that many people can get relief from surgery, and it's an option to get relief.

[AliPasha1]

Dear Violet,
We have had two confirmations of where Dr. Hollis Potter exactly pointed out where the Pudendal Nerve was entrapped, when Dr. Hibner operated on Athena's mom as well as RR/RJR.

In addition,Dr. Olga Kalinkin who works with Dr. Hibner cross-checked her images and her MRI report isn't very different from hers.

This is an incredible and promising start as far as PNE imaging is concerned.In my case, she has indicated entrapment of the Pudendal Nerve in the Falciform process of the Sacrotuberous ligament and re-entrapment of the Pudendal Nerve in the Alcock's Canal after surgery as well as dorsal Nerve Entrapment.I am confident that her pre-surgical readings would be mostly correct.However,it needs to be determined whether she is right about Post surgical patients. This would be verified on 25th April,2011 when Dr. Hibner operates on me.

This would also verify whether Dr. Bautrant is able to access the falciform process of the Sacrotuberous ligament by means of TIR approach.

So far my symptoms correlate with her findings.

Regards,
Ali