CAM lesions and pudendal symptoms

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pdn
Posts: 33
Joined: Tue May 03, 2011 9:16 pm

CAM lesions and pudendal symptoms

Post by pdn »

Spoke with dr Conway, pudendal nereualgia specialist in new hampshire, who said that some of his colleagues are finding that cam lesions, basically arthritic changes I think, in the hip joints can produce pudendal neuralgia; and recommended my seeing a hip-orthopedist. I s anyone aware of this issue and/or has dealt with this, thanks, pdn
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: CAM lesions and pudendal symptoms

Post by Lernica »

Pdn,

Many of us have hip pathologies. Search for posts under "Hip pain". Surfsup recently had hip surgery, as did Pomegranate. However, I don't think that their PN pain was resolved by their surgeries.

I have hip pathology in both hips. In the right hip, I have a labral tear, and in the left, I have calcified tendinitus of the gluteus minimus. I recently saw a hip surgeon who assured me that he could do absolutely nothing to resolve my PN pain; only the hip pain.

If you have hip pain, I urge you to get an MRI of both hips to see what's going on.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
pdn
Posts: 33
Joined: Tue May 03, 2011 9:16 pm

Re: CAM lesions and pudendal symptoms

Post by pdn »

hi, thanks for the reply. dr. Conway whom I referred to in earlier post said that some of his colleagues in France were giving cortisone injections for cam lesions and were seeing relief of pudendal nerve symptoms in some cases. he recommended that I get a hip MRI and consult with orthopod, pdn
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: CAM lesions and pudendal symptoms

Post by helenlegs 11 »

That sounds like a good plan. If an MRI does show up any hip problems a cortisone injection seems reasonable. Guess it will depend on the hip causing any PN or the other way around. It's all a bit of an experiment to see what will work.
Did Dr. Conway say which Dr's in France were doing this procedure or is it just standard practice? I forget if Dr. Conway took his lead from Nantes or Provence :oops:

It does help to take your own advice sometimes. There IS such a wealth of info on the home pages DUH!! http://www.pudendalhope.org/node/58#Conway

I very much hope it works for you, let us know. That's another way how we can keep up to date with everything :)
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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