Ongoing List of Doctors by State Who Diagnose/Treat PNE/PN

[shawnmellis]

Everyone, please add any doctors you know of to this Ongoing List of Specific Names of Doctors Listed by State Familiar With Diagnosing & Treating Pudendal Neuralgia/PNE Listed By State-This does not mean they all do surgery for it. This is just a list of those familiar with how to Diagnose it and treat it with medication and not surgically. Some of them listed on here also do surgery for it. The purpose of this ongoing list is to help those who need help in their local area to find a doctor to help the get diagnosed by either a CAT Scan Guided Nerve Block, EMG, PNMLT, clinical symptoms, etc. This is not a complete list, but a list of ones I know are familiar with PNE and diagnosing it. Everybody, Please help me to add more doctors to this list, if you know of any for a fact who are familiar with PN/PNE and can diagnose it and help treat it with medication. feel free to add any more Doctors in the U.S. you know of to this list to help everyone out.

Arizona
-Dr. Michael Hibnerr, Phoenix, AZ
California
Dr. Aaron Filler
Maryland
Dellon Institute. Dr. A. Lee Dellon, Towson, M
Minnesota-
Dr. Stanley Antolak, Minneapolis, MN
New Hampshire
Dr. Mark Conway, Merrimack, NH
New York
Pretty sure there is one somewhere there in Rocchester New York?
North Carolina
Dr. Robert Evans- Wake Forest Baptist Medical Center Urology Department, Wake Forest NC
Dr. William Rosenberg-Cabarrus Famiily Sports Medicine, Concord, NCDr. Kevin Burroughs-Cabarrus Family Sports Medicine Concord, NC
Dr. Scott Ellis-Onslow Primary Care, Jacksonville, NC
Pennsylvania
-Dr. Robert Echenberg- Bethlehem, Pennsylvania
Texas-
Dr. Kenneth Renney, Houston, TX
It is also possible to get diagnosed and treated with medication and with a Pudendal Nerve Block Cat scan guided in your local area, most of the time, by finding a doctor in your area familiar with PN/PNE which is not easy to do unless you know how to do it. You can find one however, by going to the following website at http://www.amssm.org/Find-a-Doc.html and do a search for a local Sports Medicine/Orthopedic Doctor, while you are waiting possibly for months to get in to see one of the PNE specialists like Hibner, etc. You can search at this website by state, Just select search by state instead of last name and then enter your state abbreviation. Sports Medicine/Orthopedic doctors are highly trained on recognizing and treating PN/PNE , which is how I was diagnosed. They can also find other problems that may mimick or even cause PN/PNE such as SIJD and Piriformis Syndrome, Lower Back problems, etc. They are the the best besides a PNE specialist to treat and diagnose you with PNE/PN, and schedule a pudendal nerve block locally for you. You can also call 913-327-1415 to find one in your area you live. For more information on what Sports Medicine/Orthopedic doctor do go to http://cabarrusfamily.com/documents/Wha ... an_000.pdf You may also try to call urologists/Neurologists to see if they are familiar with it BEFORE making your appointment. Make sure you call the specific specialists doctor's office and ask if there are any doctors there who are familiar with PN/PNE in diagnosing or treating it before making your appointment. Good luck. One important thing is finding a doctor who understands PNE/PN and in my experience, unless you live near one of the PNE surgeons, this is one way of getting some kind of doctor close to you to understand your problem, get the diagnosis started, medication started, etc. I had to see 5 urologists, 2 gastroenterologists, 3 primary care doctors, 3 visits to the ER, neurologist, multiple primary care doctors, before finally my brother who is a doctor told me to go to a Sports Medicine/Orthopedic doctor where they diagnosed me on the spot from my symptoms and got me right away into doing a CAT scan guided Pudendal Nerve Block. Apparently PNE and PN is a lot of times a sports related injury such as from weight lifting, bicycling, falls, trauma, so Orthopedic/Sports Medicine Doctors know about PNE more than some specialists. There are other causes, such as from surgery, hysterectomy, etc, but besides those causes, sports related and trauma/injuries are another big cause of PN and PNE. Also, one more thing, I know a lot of people with PNE including myself who have urinary related or bowel related symptoms. You should of course see these specialists to rule out other causes, but if after all that you have no luck, and want to see if you do have PNE/PN, which most of you probably may have because you are on this site. Having said that, me and a lot of other people with this have urinary frequency/urgency problems. I have tried everything, and the only thing that helped me with this was Diazepam, which is a muscle relaxer. I have tried other ones, and they have not worked unfortunately. I also know a lot of people with PN/PNE who urinary problems and pain in the perineum, are helped with Diazepam, which relaxes your pelvic floor muscles and nerves. Some take it in suppository form and use it that way others take it orally, which is how I take it. This advice does not replace the advice of a doctor's opinion, and always consult your doctor about any medication and interactions, but I am just telling you what has worked for me and many others with PN/PNE that have urinary frequency/urgency problems from PN/PNE. There's Always Hope!