New Symptom

[carolynm]

Christopher,
How are you today?
What about startin with some PT to get that SI back into place? My doctor here in Denver seems to think my symptoms are a result of SIJD so I'm trying to find some good manip PT's to work with.

Hope you are having a better day. We are all "special" in that we are dealing with such a mind-blowing, horrific disease. I wish the best for you and please keep us posted.

cari

[pn_person]

About 3 weeks ago I awoke to find that I had leaked stool into my bedclothes. It was the first time that had ever happened to me in 7+ years with PN. I also noticed over the next couple of days after that my anus felt more numb than usual, with a sort of cold/wet feeling. This is scary.

I have not been on the pudendal forums much in the last few years. I had surgery in 2004 down in Houston and after 6 months of improvement I plateaued and have not seen any improvement since. Although the surgery completely cured a number of my symptoms, my worst symptom remained--bad rectal pain on the left side. But it was tolerable as long as I had enough medication. So I set about trying to regain some semblance of a life.

Now I find that slipping away a bit. It's one thing to put up with pain that maintains a status quo. But when you start getting problems with bodily function... Whoa. That's a horse of a different color.

I visited this forum and the TIPNA forum over the last couple of days and noticed the posts on Dr. Potter's MRIs. That is very exciting and I tell you what, I am ***really*** interested in having that done. I have long believed that there is *something* still impinging on my pudendal nerve somewhere. To think that I could potentially find out what exactly is wrong--and thereby potentially set the sate for a surgical remedy--that really has my interest.

As I said, my pain is RECTAL. It would make sense, don't you think, that the rectal branch of the pudendal nerve is involved somehow.

I saw my pain mgmt doctor today and he wrote me a script for an MRI. I am going to call Dr. Potter's office tomorrow and schedule it.

Does anyone have any advice, thoughts, comments?

Thanks much.

C

was that your only incident of anal incontinence?
if so, not so scary..of course if the incontinence is continuing, that us horrible, and super, super scary

I have read that long term constipation can, ironically, eventually lead to incontinence as the PN is damaged further with each incidence of the constipation..not sure if you had a problem with constipation

I have read a ton about it, because my PN issue has given me serious constipation

sounds like you have a good plan to determine the proper way to proceed with treatment

good luck going forward!