Okay, now that my Potter MRI shows an entrapment, is it necessary to continue PT? I'd like to decrease the amount of appointments I have (I'm sooooo sick of all of them) and I don't see how it will help in any way. My MD seems to think I should continue it.
Any thoughts?
cari
Do I still need PT?
Do I still need PT?
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Re: Do I still need PT?
Hi Cari,
Blocks numbed pain area. Potter MRI showed entrapment. Forget the PT. If it hasn't helped by now it's unlikely to make a difference. See if you can tolerate Lyrica instead of neurontin- works faster with less side effects and more pain relief (at least for me). Take an extra percocet (or two). Give Cymbalta a shot. I'm not a doctor- just an x-ray tech. Just my opinion. As HM said so eloquently in her post- this won't last forever and you'll get better at dealing with it. Hang in there.
Don
Blocks numbed pain area. Potter MRI showed entrapment. Forget the PT. If it hasn't helped by now it's unlikely to make a difference. See if you can tolerate Lyrica instead of neurontin- works faster with less side effects and more pain relief (at least for me). Take an extra percocet (or two). Give Cymbalta a shot. I'm not a doctor- just an x-ray tech. Just my opinion. As HM said so eloquently in her post- this won't last forever and you'll get better at dealing with it. Hang in there.
Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Re: Do I still need PT?
thank you, Don. I could not tolerate Lyrica, got the double vision on a small dose. Am doing better with the Neurontin. Am only at 400 mg/day and working my way up.
I agree, the PT is just costing me money and I can't imagine what she can possibly do for me at this point.
cari
I agree, the PT is just costing me money and I can't imagine what she can possibly do for me at this point.
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Re: Do I still need PT?
Cari,
Do give yourself lots of time between increasing your doses of Neurontin. I gave myself a week (or two, I don't remember) before upping it, 300 mg. each time. Then I decreased it very slowly and stopped it altogether when it didn't work for my pain.
Do give yourself lots of time between increasing your doses of Neurontin. I gave myself a week (or two, I don't remember) before upping it, 300 mg. each time. Then I decreased it very slowly and stopped it altogether when it didn't work for my pain.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Do I still need PT?
I did the same thing Cari, 300 mg increase at a time and over 5-7 days. As for PT, I am so over it. It's ridiculously expensive and other than the fact that I like my PT and enjoy talking with her it's probably a waste. Probably going to be quitting soon myself.Lernica wrote:Cari,
Do give yourself lots of time between increasing your doses of Neurontin. I gave myself a week (or two, I don't remember) before upping it, 300 mg. each time. Then I decreased it very slowly and stopped it altogether when it didn't work for my pain.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: Do I still need PT?
I took it even slower, steps of 100mg at weekly intervals. And I too had some vision problems with pregabalin/Lyrica early on, frightening at the time but they passed.
Re: Do I still need PT?
Dr. Antalok told me that he knew of no one that was helped with pn pain from PT...If It was me , I would quit... maybe others have different opinions.. If it is trapped it is trapped...
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Re: Do I still need PT?
Cari,
My PT even agreed she could not help until 1month after surgery, they are now helping in my recovery. Give yourself the break. I also took the 100mg route to up my way on gabapentin/neurontin. Good luck
janet
My PT even agreed she could not help until 1month after surgery, they are now helping in my recovery. Give yourself the break. I also took the 100mg route to up my way on gabapentin/neurontin. Good luck
janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Re: Do I still need PT?
My dr (urologist, website specifically says she treats pudendal neuralgia patients)....says to keep going with the PT. I can't believe it. The drive is 40 minutes, bumpy, and it's $100. Yes, she is out of network. But she is the only PT with manipulation background in my small town.
I guess I'll keep trudging out there, so I know I am doing everything remotely possible to get some relief.
cari
I guess I'll keep trudging out there, so I know I am doing everything remotely possible to get some relief.
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)