http://www.whria.com.au/page.aspx?docid=162
Prof. Roger Robert and his team will take part in Australia's next Chronic pelvic pain conference in Sydney. Great news for Australia.
Nantes team coming to Australia Feb. 2012
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catherine a
- Posts: 291
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Nantes team coming to Australia Feb. 2012
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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Stephanie P
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Re: Nantes team coming to Australia Feb. 2012
Fantastic news, Catherine. I'd love to catch up with Prof. Robert et al while they're down this way. Has Prof. Vancaillie been instrumental in getting them to Australia? I hope plenty of NZ medics attend. I should email Robert and see what gives.
Pudendal neuralgia, diagosed as ischial bursitis, from 1985. Worsened by fall in 2003. Bilateral TG surgery in Nantes 2004. Nerve flattened both sides. No improvement, still cannot sit.
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catherine a
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- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Nantes team coming to Australia Feb. 2012
Hello Stephanie,
Yes, Prof. Vancaillie has organised this annual seminar for 3 years running now. Dr. Bautrant has been working with him to bring more awareness and education to Australia & New Zealand. This is the first time Prof. Robert and his team will be visiting Australia.
Prof. V has also teamed up with Deborah Bush (NZ) and Susan Evans (Tasmania.) They are working together writing a document on chronic pelvic pain to be submitted to Federal and State Govt's. in Aust. & NZ.
Thanks to Prof. V we are beginning to see changes for the better although they have a long way to go to convince other doctors that pudendal nerve pain is real. I'm very happy to see Dr. Vincent Tse will be addressing pelvic pain in men. As Vanessa and I are running a support group we're allowed to attend. Would be so nice for you to see Prof. Robert again. Are you feeling any better these days Stephanie? Is the chronic fatigue still a major problem? I do hope things are improving for you. I'm doing ok, still have pain but very minimal and stable. Sometimes it flares horribly but it settles down again in a few days. Getting on with life despite the discomfort. It feels good to call it 'discomfort' as oppose to 'intolerable' I'm planning on having a long holiday to the UK and Ireland next year. Will have to travel business class as sitting for the laung haul will definitely cause too much pain. I'm going to enjoy myself no matter what. Put PN on the backburner for a while.
Perhaps we could catch up in Sydney, Feb. 2012
Catherine
Yes, Prof. Vancaillie has organised this annual seminar for 3 years running now. Dr. Bautrant has been working with him to bring more awareness and education to Australia & New Zealand. This is the first time Prof. Robert and his team will be visiting Australia.
Prof. V has also teamed up with Deborah Bush (NZ) and Susan Evans (Tasmania.) They are working together writing a document on chronic pelvic pain to be submitted to Federal and State Govt's. in Aust. & NZ.
Thanks to Prof. V we are beginning to see changes for the better although they have a long way to go to convince other doctors that pudendal nerve pain is real. I'm very happy to see Dr. Vincent Tse will be addressing pelvic pain in men. As Vanessa and I are running a support group we're allowed to attend. Would be so nice for you to see Prof. Robert again. Are you feeling any better these days Stephanie? Is the chronic fatigue still a major problem? I do hope things are improving for you. I'm doing ok, still have pain but very minimal and stable. Sometimes it flares horribly but it settles down again in a few days. Getting on with life despite the discomfort. It feels good to call it 'discomfort' as oppose to 'intolerable' I'm planning on having a long holiday to the UK and Ireland next year. Will have to travel business class as sitting for the laung haul will definitely cause too much pain. I'm going to enjoy myself no matter what. Put PN on the backburner for a while.
Perhaps we could catch up in Sydney, Feb. 2012
Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: Nantes team coming to Australia Feb. 2012
Great work Catherine, what a long way things have come !!! I am interested to read there is a Kiwi in there, will google her. i watched Prof V on youtube the other day, fantastic footage. Do you have the second half of his address ? So reassuring to have all of this PN awareness finally happening, you should be knighted !
PNE from cycling. Surgery with Prof Vancaillie, Sydney Australia 2008.
Very much improved
Very much improved
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helenlegs 11
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Re: Nantes team coming to Australia Feb. 2012
Well Done Catherine.bindy15 wrote:Great work Catherine, what a long way things have come. . . . you should be knighted !
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Nantes team coming to Australia Feb. 2012
http://www.youtube.com/watch?v=juAve2pNxws http://www.youtube.com/watch?v=5E2LjVRO-OA
Are these the two parts you've seen Jude?
Are these the two parts you've seen Jude?
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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Stephanie P
- Posts: 74
- Joined: Mon Oct 11, 2010 10:06 am
Re: Nantes team coming to Australia Feb. 2012
Hi Catherine,
It's good to know you're doing well. Yes, it would be great to catch up in Sydney. That awful fatigue is lessening, at last, and I'm in a low-pain phase at the moment (as long as I don't sit etc). I can't believe how light I feel!
It's good to know you're doing well. Yes, it would be great to catch up in Sydney. That awful fatigue is lessening, at last, and I'm in a low-pain phase at the moment (as long as I don't sit etc). I can't believe how light I feel!
Pudendal neuralgia, diagosed as ischial bursitis, from 1985. Worsened by fall in 2003. Bilateral TG surgery in Nantes 2004. Nerve flattened both sides. No improvement, still cannot sit.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Nantes team coming to Australia Feb. 2012
Latest news from Australia. Prof. Vancaillie now doing TG approach. See http://www.whria.com.au/page.aspx?docid=162
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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Stephanie P
- Posts: 74
- Joined: Mon Oct 11, 2010 10:06 am
Re: Nantes team coming to Australia Feb. 2012
This is truly fantastic news, Catherine - TG surgery in Australasia at last!
Pudendal neuralgia, diagosed as ischial bursitis, from 1985. Worsened by fall in 2003. Bilateral TG surgery in Nantes 2004. Nerve flattened both sides. No improvement, still cannot sit.