Anyone want to guess?

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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carolynm
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Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Anyone want to guess?

Post by carolynm »

Hello friends,

My pain/numbness is from anus to clitoris. Anyone have a guess as to which branch of the nerve I may have entrapped? I'm still learning the anatomy of all this stuff. No ischial tuberosity pain.

thanks,
cari
Last edited by carolynm on Sun Aug 21, 2011 12:07 am, edited 1 time in total.
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
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Violet M
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Re: Anyone want to guess?

Post by Violet M »

Cari, the area you are describing is the saddle area typically innervated by the PN. My PN pain was not so much right on the ischial tuberosities either but more to the inside of them however, as the pain progressed it was everywhere -- just felt like I had been hit with a baseball bat throughout the pelvic region but part of that may have been due to muscles going into spasm.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
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Re: Anyone want to guess?

Post by helenlegs 11 »

I would guess (and that's really all it is) that you do have PN and possibly at a point after alcocks canal and therefore may be one of the branches of the pudendal nerve.I am basing this on Dr Hibner's statement that pain at the ischeal tuberosity is from Alcock's canal which I think would actually be a good survey to do with those who have had entrapment there, actually confirmed with surgery.
With the nature of nerve pain travelling distally down a nerve from any irritated/entrapped site could pain at ischeal tuberosity occur if the problem began further up ie ss and st ligaments I wonder, again a good survey? we might be getting somewhere if that could be found to be the case (or not) although there may always be exceptions.
The point Violet made about muscle involvement complicating the issue must also be taken into consideration BUT muscles may not be able to have any effect on the nerve at this point as it is protected to a good extent in alcocks? ? Obviously some people have different pathologies and the branches of the nerve divide before Alcocks ad are perhaps more exposed.
Is your numbness constant Cari? Do I get a prize if I'm right :D ?
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
carolynm
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Location: CO

Re: Anyone want to guess?

Post by carolynm »

Thanks for input dear friends...

My numbness is less often than the pain actually. Mostly pain. Sitting is getting intolerable.

Wish the prize could be a big hug because from you all I have gathered so much strength.
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Anyone want to guess?

Post by Faith »

I would guess one the anterior alcocks canal or perineal branch but that's just a guesss based on your symptoms. Have you been checked for SI joint dysfunction? Also I know you were asking about meds have you tried amitriptyline?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
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Violet M
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Re: Anyone want to guess?

Post by Violet M »

helenlegs 11 wrote: The point Violet made about muscle involvement complicating the issue must also be taken into consideration BUT muscles may not be able to have any effect on the nerve at this point as it is protected to a good extent in alcocks? ?
Helen, I could be wrong but it's my understanding that alcock's canal is simply a small space that runs between the obturator internus muscle and the levator ani muscles through which the pudendal nerve travels. That's why I believe if those muscles are in spasm they can impinge on the nerve and cause irritation. Sometimes the nerve is entrapped in the fascia of the muscles or as Dr. Bautrant explained it, sometimes the obturator internus muscle is enlarged and that puts pressure on the nerve in alcock's.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Anyone want to guess?

Post by Faith »

Violet M wrote:[ Sometimes the nerve is entrapped in the fascia of the muscles or as Dr. Bautrant explained it, sometimes the obturator internus muscle is enlarged and that puts pressure on the nerve in alcock's.
So if the obturator internus muscle is enlarged, what do they do about that in surgery?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
User avatar
Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: Anyone want to guess?

Post by Violet M »

Dr. Bautrant and Dr. Filler sometimes cut part of it away. Not sure about the other docs. I've heard of it being shrunk/atrophied with Botox.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
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Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Anyone want to guess?

Post by helenlegs 11 »

Violet M wrote:
helenlegs 11 wrote: The point Violet made about muscle involvement complicating the issue must also be taken into consideration BUT muscles may not be able to have any effect on the nerve at this point as it is protected to a good extent in alcocks? ?
Helen, I could be wrong but it's my understanding that alcock's canal is simply a small space that runs between the obturator internus muscle and the levator ani muscles through which the pudendal nerve travels. That's why I believe if those muscles are in spasm they can impinge on the nerve and cause irritation. Sometimes the nerve is entrapped in the fascia of the muscles or as Dr. Bautrant explained it, sometimes the obturator internus muscle is enlarged and that puts pressure on the nerve in alcock's.
Thanks Violet,
Had seen surgery pics of it and assumed it was a separate entity :) Wikipedia comments that it is 'formed by the obturator internus fascia.'
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Kath
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Joined: Sun Dec 26, 2010 5:20 pm
Location: UK

Re: Anyone want to guess?

Post by Kath »

Some surgeons are removing some nerve supply to the OI muscle so it will atrophy and make more space in alcock's canal.
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