...does anyone know if Paulette had her surgery with Conway today? I know she was thinking about cancelling. haven't seen her on the forum for a bit. Would love an update from her!
cari
Paulette
Re: Paulette
Hi Carolyn,
Thanks so much for asking about Paulette! That was very thoughtful of you! Yes, Paulette had unilateral TG surgery with Dr. Conway on Tuesday (08/23/11). Prior to the surgery, we went for a consult with Dr. Conway on Monday so he could personally review her medical records and history with her, and perform an exam . She aslo had an EMG test done that day. Dr. Conway took her images to St. Josephs hopsital in Nashua to review with a radiologist before meeting with her, as there was concern screws from a previous SIJ fusion surgery may be impeding on her sacral nerves. This was ruled out. Her EMG numbers reflected a significant delay of the pudendal nerve. Paulette did well with the surgery, but I'm sad to report that it was found her nerve was severely damaged (atrophied). We're hoping for the best, and Paulette realizes her recovery may take longer than others. She truly is a strong, brave person. She's pretty uncomfortable right now and does have the On-Q Pain Pump installed. This seems to be causing her additional surgical pain. The plan is that she'll be released from the hospital some time today and I'm looking forward to taking her and her mom back to their hotel and getting her settled.
Paulette did ask me to update the community when I saw her Tuesday afternoon, but she was kinda out of it from the anesthesia and said all kinds of crazy things (she was soooo cute!!!!!).
She doesn't even remember me being there! I'll be sure to tell her you where asking about her, Carolyn, and confirm she's OK with me sharing information about her.
With love,
Karyn
Thanks so much for asking about Paulette! That was very thoughtful of you! Yes, Paulette had unilateral TG surgery with Dr. Conway on Tuesday (08/23/11). Prior to the surgery, we went for a consult with Dr. Conway on Monday so he could personally review her medical records and history with her, and perform an exam . She aslo had an EMG test done that day. Dr. Conway took her images to St. Josephs hopsital in Nashua to review with a radiologist before meeting with her, as there was concern screws from a previous SIJ fusion surgery may be impeding on her sacral nerves. This was ruled out. Her EMG numbers reflected a significant delay of the pudendal nerve. Paulette did well with the surgery, but I'm sad to report that it was found her nerve was severely damaged (atrophied). We're hoping for the best, and Paulette realizes her recovery may take longer than others. She truly is a strong, brave person. She's pretty uncomfortable right now and does have the On-Q Pain Pump installed. This seems to be causing her additional surgical pain. The plan is that she'll be released from the hospital some time today and I'm looking forward to taking her and her mom back to their hotel and getting her settled.
Paulette did ask me to update the community when I saw her Tuesday afternoon, but she was kinda out of it from the anesthesia and said all kinds of crazy things (she was soooo cute!!!!!).
She doesn't even remember me being there! I'll be sure to tell her you where asking about her, Carolyn, and confirm she's OK with me sharing information about her.
With love,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Paulette
Update:
I just spoke with Paulette. She's still in a considerable amount of pain, so they're going to keep her in the hospital for another day.
I just spoke with Paulette. She's still in a considerable amount of pain, so they're going to keep her in the hospital for another day.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Paulette
Poor Paulette. She's already been through so much. Karyn, please give her a big hug for me. It's very sweet of you to be there for her.
She's already been through so much. Karyn, please give her a big hug for me. It's very sweet of you to be there for her.Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Paulette
Hi Lernica,
Welcome back from vacation! I hope you had a nice, relaxing time.
I was going to stay home to rest today, but am heading up to the hospital instead. I will certainly pass along your well wishes and give her an extra hug from you.
Welcome back from vacation! I hope you had a nice, relaxing time.
I was going to stay home to rest today, but am heading up to the hospital instead. I will certainly pass along your well wishes and give her an extra hug from you.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Paulette
Thanks for the update Karyn. I was thinking of Paulette on Monday and Tuesday and am glad to hear at least that they found the source of her pain. I am so sorry she is in so much post-op pain though. Hopefully an extra day in the hospital will help her. She is in my prayers.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: Paulette
Karyn,
I wonder where she was entrapped, I know she didn't have the money to get an MRI so never really knew. She was concerned about doral nerve entrapment. Do you know that info? I only ask because I care about her.....
cari
I wonder where she was entrapped, I know she didn't have the money to get an MRI so never really knew. She was concerned about doral nerve entrapment. Do you know that info? I only ask because I care about her.....
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Re: Paulette
Karyn, thanks for updating us on Paulette. Great that you are able to be there for her. I'm sending her prayers for the best possible recovery.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
-
helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Paulette
It sounds like she has had a really rough time and SO needed that op. Please send her lots of love from me Karyn.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Paulette
Karyn,
Great to hear you were able to be there for Paulette when she really needed it. Please give her my best wishes and tell her I am hoping that she will feel better soon.
Don
Great to hear you were able to be there for Paulette when she really needed it. Please give her my best wishes and tell her I am hoping that she will feel better soon.
Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell