I live in Dunedin, New Zealand.
Looking for a diagnosis of something to do with the Pudendal Nerve, as I have had issues for over 2 years now.
Does anyone know of a doctor or specialist in New Zealand that I could contact, and potentially visit.
thanks in advance
Are there any New Zealand PN specialists?
Are there any New Zealand PN specialists?
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Are there any New Zealand PN specialists?
Hi Kia Kaha,
As Pudendal nerve research is fairly recent in Australia, we don't yet know of any specialist in NZ. There are a few people on these forums from NZ who will probably see this message and add to this thread. In Australia Prof. Thierry Vancaillie in Sydney is the leading specialist in PN issues. He has been working closely with a lady called Deborah Bush who is the CEO of Endometriosis New Zealand. She's based in Christchurch and has been working here in Australia with Prof. V but most people from NZ with this condition have come to Sydney to seek help.
You could try making contact with Deborah Bush as she might know where to direct you to next. Here is a link http://www.oxfordclinic.co.nz/medical-s ... r/deb-bush
You could also try emailing the Women's Health Research Institute of Australia www.whria.com.au and ask if they know of any NZ gynaecologsits who are treating Pudendal nerve conditions. WHRIA have organised conferences on pelvic pain in Australia for 3 years running now. Next year will be even bigger with specialists coming from all over Australia and New Zealand. When you see a doctors name with FRANZCOG after it, it means he or she is a Fellow of the Royal Australian and New Zealand College of Obstetricians and Gynaecologists. We are slowly seeing more and more doctors taking an interest in our plight and I do hope you find someone in NZ who can help. Let us know if you do and good luck. Welcome to our forum. We're here to offer support to one another so don't hesitate to keep in touch.
As Pudendal nerve research is fairly recent in Australia, we don't yet know of any specialist in NZ. There are a few people on these forums from NZ who will probably see this message and add to this thread. In Australia Prof. Thierry Vancaillie in Sydney is the leading specialist in PN issues. He has been working closely with a lady called Deborah Bush who is the CEO of Endometriosis New Zealand. She's based in Christchurch and has been working here in Australia with Prof. V but most people from NZ with this condition have come to Sydney to seek help.
You could try making contact with Deborah Bush as she might know where to direct you to next. Here is a link http://www.oxfordclinic.co.nz/medical-s ... r/deb-bush
You could also try emailing the Women's Health Research Institute of Australia www.whria.com.au and ask if they know of any NZ gynaecologsits who are treating Pudendal nerve conditions. WHRIA have organised conferences on pelvic pain in Australia for 3 years running now. Next year will be even bigger with specialists coming from all over Australia and New Zealand. When you see a doctors name with FRANZCOG after it, it means he or she is a Fellow of the Royal Australian and New Zealand College of Obstetricians and Gynaecologists. We are slowly seeing more and more doctors taking an interest in our plight and I do hope you find someone in NZ who can help. Let us know if you do and good luck. Welcome to our forum. We're here to offer support to one another so don't hesitate to keep in touch.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: Are there any New Zealand PN specialists?
Hi Kia Kaha
I have PM'd you, sometimes they don't get through .... I am sure I can help you
J
I have PM'd you, sometimes they don't get through .... I am sure I can help you
J
PNE from cycling. Surgery with Prof Vancaillie, Sydney Australia 2008.
Very much improved
Very much improved
Re: Are there any New Zealand PN specialists?
Hi Catherine a
Thanks for your great info.
I have actually bought and read Deborah Bushs' book she co-authred. I have also been through the Oxford Clinic. Dr Simon Jones, as they were investigating Endometriosis (which it wasn't), I had a laporoscopy and they put a mirena in saying it was adenomyosis, the mirena caused heaps of problems, but it couldn't be removed because they cut the strings too short, so i had to wait 11 months for an operation for it to be removed. At the removal they said it wasn't adenomyosis either.
I did have a long appointment with the oxford clinic pain management nurse with all my symptoms, but she never mentioned Pudendal, looking back now it couldn't be missed ??
I have the possibility of seeing a private doctor specialist in Dunedin who specialises in Urogynecology, Prof Don Wilson. I don't know if he has any experience with pudendal yet, his secretary wouldn't answer the question.
I have spoken with another lady on this forum from Wellington, who was an excellent help.
And now I have Bindy15 to talk to as well. (PM sent)
This is a great forum!
When I get another space to type i will put my story up.
Thanks for your great info.
I have actually bought and read Deborah Bushs' book she co-authred. I have also been through the Oxford Clinic. Dr Simon Jones, as they were investigating Endometriosis (which it wasn't), I had a laporoscopy and they put a mirena in saying it was adenomyosis, the mirena caused heaps of problems, but it couldn't be removed because they cut the strings too short, so i had to wait 11 months for an operation for it to be removed. At the removal they said it wasn't adenomyosis either.
I did have a long appointment with the oxford clinic pain management nurse with all my symptoms, but she never mentioned Pudendal, looking back now it couldn't be missed ??
I have the possibility of seeing a private doctor specialist in Dunedin who specialises in Urogynecology, Prof Don Wilson. I don't know if he has any experience with pudendal yet, his secretary wouldn't answer the question.
I have spoken with another lady on this forum from Wellington, who was an excellent help.
And now I have Bindy15 to talk to as well. (PM sent)
This is a great forum!
When I get another space to type i will put my story up.
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
Re: Are there any New Zealand PN specialists?
There's an e-book on Judy Birch's website that's co-authored by a NZ doc and an Australian doc -- Dr. Susan Evan and Dr. Deborah Bush. http://tinyurl.com/8ycd39z
Has anyone been to either of these docs? They have a section in their book about pudendal neuralgia and a section on neuropathic pain.
Has anyone been to either of these docs? They have a section in their book about pudendal neuralgia and a section on neuropathic pain.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Are there any New Zealand PN specialists?
Hi
I do know of a pelvic floor therapist in Auckland but thats probably not much help to you. But if you want her details just let me know.
I hope you are able to find some help in Dunedin.
Regards,
Jacko
I do know of a pelvic floor therapist in Auckland but thats probably not much help to you. But if you want her details just let me know.
I hope you are able to find some help in Dunedin.
Regards,
Jacko
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Are there any New Zealand PN specialists?
Both Dr. Evans and Deborah Bush are working together with Prof. Thierrry Vancaillie on a pelvic pain document to be submitted to The Australian & NZ Federal Govts.
Both these doctors have given presentations at the Sydney pelvic pain conferences. Dr. Susan Evans is in South Australia and Deborah Bush is in Christchurch NZ.
http://www.drsusanevans.com/
http://www.endometriosiszone.org/displa ... board_bush
Both these doctors have given presentations at the Sydney pelvic pain conferences. Dr. Susan Evans is in South Australia and Deborah Bush is in Christchurch NZ.
http://www.drsusanevans.com/
http://www.endometriosiszone.org/displa ... board_bush
Last edited by catherine a on Sun Nov 27, 2011 2:15 am, edited 2 times in total.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
-
catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Are there any New Zealand PN specialists?
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.