I know what you mean about carbs being comfort food. I ate some bread over the weekend, for the first time this year. We had a guest for lunch and we bought some bread, normally we don't have any in the house. I did enjoy eating it! - carbs definitely have a feel-good impact - but then I didn't feel good afterwards.
I am not coeliac, but I definitely don't react well to wheat. Sometimes it doesn't hurt for me to have a reminder of why I don't eat it. Lesson learned, I hope. And with regard to fruit - carbs there as well, of course - when we have fruit, it is at breakfast time. The insulin response behaves better early in the day, and we are both pretty carb sensitive here.
With regard to Lyrica - I've just asked this question in the Medications section, by the way - do we know why/how it causes weight gain?
Need to lose 30lb
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: Need to lose 30lb
I have been learning a lot about wheat / gluten sensitivity lately; celiac disease is sensitivity to one particular part of the molecular structure of gluten, and the celiac test only tests for that part, hence it is insufficient to determine wheat sensitivity. There are tests available from some specialty labs, which cover sensitivity to all areas of the gluten molecule, but they are fairly expensive and less likely to be covered by insurance. The cheap and effective method to determine gluten sensitivity is to go totally gluten free for a couple of weeks and see how it feels. If you are gluten sensitive, results from a trial of diet tend to be rapid and dramatic.
I am not gluten sensitive but a lot of my family members are so I have been sent a bunch of articles lately. One of them stated that wheat sensitivity is becoming more and more common because the genetic engineering of the wheat plant to allow for larger harvests, has added complexity to the molecular structure of wheat. Some large percentage...can't remember but it could be as high as 10% - 20% of the population is now suspected to have some degree of wheat sensitivity due to these changes.
Sorry to veer off topic a bit but I thought that might help clarify your situation calluna.
I am not gluten sensitive but a lot of my family members are so I have been sent a bunch of articles lately. One of them stated that wheat sensitivity is becoming more and more common because the genetic engineering of the wheat plant to allow for larger harvests, has added complexity to the molecular structure of wheat. Some large percentage...can't remember but it could be as high as 10% - 20% of the population is now suspected to have some degree of wheat sensitivity due to these changes.
Sorry to veer off topic a bit but I thought that might help clarify your situation calluna.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Re: Need to lose 30lb
That's interesting HM. I can well believe it, and regarding the increasingly engineered wheat - when we were staying in rural Crete some years back, neither of us had any problems at all with the local bread. It fits, I think.
Re: Need to lose 30lb
Well to update, this week Ive not lost a single pound but havent gained one either which is ok.
I notice Calluna if I eat any pastry or white flour based products then i too roll around with stomach aches....I try my best to avoid these products preferring wholewheat pasta and bread which also helps so much with constipation.
I notice Calluna if I eat any pastry or white flour based products then i too roll around with stomach aches....I try my best to avoid these products preferring wholewheat pasta and bread which also helps so much with constipation.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Need to lose 30lb
Well, this week I have actually lost - ta da! - one pound. That means that I now have an amazing total weight loss so far of - one pound.
Lyrica has a lot to answer for.....
I hate to think how much I'd have gained if I wasn't on this diet. Ho hum.
Amanda - I have discovered that I can eat low carb pasta with no problem at all, it is high fibre which is a nice added bonus. It is 5 grams of carb per serving.
Lyrica has a lot to answer for.....
I hate to think how much I'd have gained if I wasn't on this diet. Ho hum.Amanda - I have discovered that I can eat low carb pasta with no problem at all, it is high fibre which is a nice added bonus. It is 5 grams of carb per serving.
Re: Need to lose 30lb
I have just read a really interesting blog post about how dairy products can assist with weight loss, and I thought I would share it with this group. You'll find it here. The study about protein intake and dairy intake is quite surprising, I think.
I had yogurt with blueberries for breakfast this morning, and I've just had a whey protein shake for lunch, so I'm obviously on the right track!
I had yogurt with blueberries for breakfast this morning, and I've just had a whey protein shake for lunch, so I'm obviously on the right track!
Re: Need to lose 30lb
Oh, this is bad. I am not winning this battle. This morning I am four pounds up on my starting weight. 
I know it is probably because I am changing the meds around a bit - starting nortriptyline again - but I am also reducing the pregabalin (Lyrica) a bit and surely that ought to balance it out a bit? It doesn't seem to work that way, though. I am still not eating much, one small meal a day plus a couple of protein drinks. If I was eating normally I think I'd probably be as big as a house. Darn these meds, I will be so so pleased if the surgery works and I can stop taking them!
All very annoying.
Tracy and Helen you are doing so well! Who else is still doing this? - this thread and the stats one seem to have gone a bit quiet, is it just me talking to myself?
I know it is probably because I am changing the meds around a bit - starting nortriptyline again - but I am also reducing the pregabalin (Lyrica) a bit and surely that ought to balance it out a bit? It doesn't seem to work that way, though. I am still not eating much, one small meal a day plus a couple of protein drinks. If I was eating normally I think I'd probably be as big as a house. Darn these meds, I will be so so pleased if the surgery works and I can stop taking them!
All very annoying.
Tracy and Helen you are doing so well! Who else is still doing this? - this thread and the stats one seem to have gone a bit quiet, is it just me talking to myself?
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Need to lose 30lb
I just feel so embarrassed that I have completely stalled in my weight loss, so haven't posted on here, that all. I am staying where I got to, but achieved that about a month ago GGGRRRrrr! Sorry nothing seems to be working for you Calluna at the moment, the meds HAVE to be playing a major part in it. There's always next week 
Tracy is a star!
Tracy is a star!
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: Need to lose 30lb
Yes Tracy keep going girl!
I am in the same boat as you Helen, I have not been bothering to post because my weight is very happy right where it has landed.
Calluna I strongly believe the nortriptyline is what is killing this for me, it also has made my face break out so I am chubby and zitty
I am not eating too much really, I don't feel like dieting strenuously but I am eating a very reasonable diet. Excercise is a problem, the nortriptyline and my various neuro symptoms have combined to encourage me to lie around like a neutered dog a lot of the time. On the up side: School starts in a week, husband and I have a schedule which allows us to be home kidless on many of the school days, and I love to take a walk with my man. Much better than using the elliptical machine in the house which was my only option the summer. So maybe I'll gradually start to take some off. I'll update if I make any progress.
I feel lame about the whole thing. But I am also kind of biding my time because I hope to be cured or much improved by the tarlov cyst surgery this winter, and if I can get well and off these meds then I know taking off the weight would be a breeze.
Oh well, I am glad we motivated Tracy!
I am in the same boat as you Helen, I have not been bothering to post because my weight is very happy right where it has landed.
Calluna I strongly believe the nortriptyline is what is killing this for me, it also has made my face break out so I am chubby and zitty
I am not eating too much really, I don't feel like dieting strenuously but I am eating a very reasonable diet. Excercise is a problem, the nortriptyline and my various neuro symptoms have combined to encourage me to lie around like a neutered dog a lot of the time. On the up side: School starts in a week, husband and I have a schedule which allows us to be home kidless on many of the school days, and I love to take a walk with my man. Much better than using the elliptical machine in the house which was my only option the summer. So maybe I'll gradually start to take some off. I'll update if I make any progress.
I feel lame about the whole thing. But I am also kind of biding my time because I hope to be cured or much improved by the tarlov cyst surgery this winter, and if I can get well and off these meds then I know taking off the weight would be a breeze.
Oh well, I am glad we motivated Tracy!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Re: Need to lose 30lb
We're all in the same boat, then!
HM - nortriptyline making your skin break out - that's interesting, because I've just got that particular problem myself, and I am of an age where I should no longer be needing to worry about that. It is most annoying, I shall have to buy some spot zapping stuff. I notice that it says 'rashes' in the side effects list, I wouldn't call this a rash, exactly.
I am walking as much as I am able, every day. We've got a dog, and she needs her exercise as much as I do. I don't think I'm going to be doing any more than that, really. You were using an elliptical machine? - wow, I'm hurting just thinking about that one!
I'd really like to get some of this weight off before I have the surgery. Carrying extra weight is a risk for DVT, I've had that twice already with a PE the last time, and I really don't want to have it again. But I agree with you, if it wasn't for these meds then it would be so much easier. My husband has lost 23 lb since the beginning of June - I've gained 4lb.
Helen - no need to be embarrassed about stalling. I think that my main function now in this group is for people to be able to look at my graph and say - well at least I'm doing better than that!
HM - nortriptyline making your skin break out - that's interesting, because I've just got that particular problem myself, and I am of an age where I should no longer be needing to worry about that. It is most annoying, I shall have to buy some spot zapping stuff. I notice that it says 'rashes' in the side effects list, I wouldn't call this a rash, exactly.
I am walking as much as I am able, every day. We've got a dog, and she needs her exercise as much as I do. I don't think I'm going to be doing any more than that, really. You were using an elliptical machine? - wow, I'm hurting just thinking about that one!
I'd really like to get some of this weight off before I have the surgery. Carrying extra weight is a risk for DVT, I've had that twice already with a PE the last time, and I really don't want to have it again. But I agree with you, if it wasn't for these meds then it would be so much easier. My husband has lost 23 lb since the beginning of June - I've gained 4lb.
Helen - no need to be embarrassed about stalling. I think that my main function now in this group is for people to be able to look at my graph and say - well at least I'm doing better than that!