I am curious to know why having buttock pain on sitting is one of the associated signs of PNE. Is it to do with the pudendal nerve or is it a secondary muscular pain problem?
Anyone know?
Kath
Ischial Tuberosity pain
Re: Ischial Tuberosity pain
The nerve gets compressed when sitting.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Ischial Tuberosity pain
Thanks nyt.
I'm still a bit confused though as to the path of the pudendal nerve in relation to the ischial tuberosity. I know that if a nerve is compressed/entrapped then you feel pain from the point of compression down to the end of the nerve. So if you are trapped in the ligaments/alcock's canal then does that mean the nerve passes close to the ischial tuberosity after the ligaments/alcock's canal ?
Not sure I'm making any sense here. I'm going to blame the gabapentin making me stupid.
I'm still a bit confused though as to the path of the pudendal nerve in relation to the ischial tuberosity. I know that if a nerve is compressed/entrapped then you feel pain from the point of compression down to the end of the nerve. So if you are trapped in the ligaments/alcock's canal then does that mean the nerve passes close to the ischial tuberosity after the ligaments/alcock's canal ?
Not sure I'm making any sense here. I'm going to blame the gabapentin making me stupid.
Re: Ischial Tuberosity pain
I don't get buttock pain when sitting - I get pain in the pudendal distribution, mostly on the left. Do most of us get buttock pain, then?
Re: Ischial Tuberosity pain
No buttock pain here, just perineum....
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Re: Ischial Tuberosity pain
Kath,
I definitely have ischial tuberosity, buttock, and sacral pain. If you look at this picture http://www.pudendalhope.org/sites/defau ... 357_01.jpg you will see that the nerve runs under the piriformis and down and around by the ishcial tuberosity making the "Alcock's canal". The "butt pain" is likely from muscle spasms in all the pelvic muscles. Also there can be nerve "cross talk" between the pudendal and sciatic nerve as they lie close in proximity. This can cause the butt to feel "numb" while sitting. I think the location of pain probably correlates to where the entrapment or nerve irritation is located.
hope this makes sense. You can search on the forum for ischial tuberosity pain or butt/sacral pain and read what others have experienced. It's not uncommon.
I definitely have ischial tuberosity, buttock, and sacral pain. If you look at this picture http://www.pudendalhope.org/sites/defau ... 357_01.jpg you will see that the nerve runs under the piriformis and down and around by the ishcial tuberosity making the "Alcock's canal". The "butt pain" is likely from muscle spasms in all the pelvic muscles. Also there can be nerve "cross talk" between the pudendal and sciatic nerve as they lie close in proximity. This can cause the butt to feel "numb" while sitting. I think the location of pain probably correlates to where the entrapment or nerve irritation is located.
hope this makes sense. You can search on the forum for ischial tuberosity pain or butt/sacral pain and read what others have experienced. It's not uncommon.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: Ischial Tuberosity pain
Faith,
when is your Hibner consult? Hope I didn't ask this already....valium on board and I'm not remembering. Just thinking about you since we both have little ones to take care of along with dealing with this nightmare.
cari
when is your Hibner consult? Hope I didn't ask this already....valium on board and I'm not remembering. Just thinking about you since we both have little ones to take care of along with dealing with this nightmare.
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Ischial Tuberosity pain
Dr Hibner did say that ischeal tuberosity pain is from Alcocks canal . . . . I know I have it. Only with a deepish push but the pain will linger and definitely only sore on one side (which is where the 1T scan reported I was entrapped at Alcocks).
As well as numbness/burning etc does anyone feel as if they could trace some of the path of the nerve (or probably branches of) from the path of pain experienced. I often have the same 'channels' of pain that come and go but always follow the same line.One is a thin line in rectum another only occurs if my clitoris is touched but a pain always shoots behind the back of my thigh, near the top, following the same course. Weird or what ?
As well as numbness/burning etc does anyone feel as if they could trace some of the path of the nerve (or probably branches of) from the path of pain experienced. I often have the same 'channels' of pain that come and go but always follow the same line.One is a thin line in rectum another only occurs if my clitoris is touched but a pain always shoots behind the back of my thigh, near the top, following the same course. Weird or what ?
Last edited by helenlegs 11 on Sat Aug 20, 2011 9:05 am, edited 1 time in total.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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pomegranate
- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: Ischial Tuberosity pain
My ischial tuberosity pain is greatly helped by external PT over the area--connective tissue work and ultrasound specifically. I know that type of PT sometimes flares others, but it has been a lifesaver for me and enabled me to sit much more.
Lauren
Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
Re: Ischial Tuberosity pain
Thanks for all the replies.
Helen - Was that mentioned then on the radio interview with Dr Hibner? I haven't listened to that yet. That would make sense since I was trapped in Alcock's canal. I only get ischeal tuberosity pain with sitting, it disappears as soon as I stand. I too could draw the path of the nerve on my own body, the nerve does burn along its length in a line. I think of it like having a wedgie with a hot cheese wire. It's the only way I can describe it!
I do remember Dr G pressing various points on my buttock with me lying down and most of the points I felt no tenderness at all, which he said was the right answer. Then he pressed somewhere else and it was like toothache, the exact same pain I had in the car that morning. When I asked what he pressed on he said 'the pudendal nerve'.
Helen - Was that mentioned then on the radio interview with Dr Hibner? I haven't listened to that yet. That would make sense since I was trapped in Alcock's canal. I only get ischeal tuberosity pain with sitting, it disappears as soon as I stand. I too could draw the path of the nerve on my own body, the nerve does burn along its length in a line. I think of it like having a wedgie with a hot cheese wire. It's the only way I can describe it!
I do remember Dr G pressing various points on my buttock with me lying down and most of the points I felt no tenderness at all, which he said was the right answer. Then he pressed somewhere else and it was like toothache, the exact same pain I had in the car that morning. When I asked what he pressed on he said 'the pudendal nerve'.