PN diet?
PN diet?
I would like to start a thread on what foods to avoid. Jami has mentioned that she finds that citrus fruits seem to flare her pain, also wheat products. So far I have not made any link between the foods I eat and pain. Anyone else?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: PN diet?
Because I have primarily neuropathic itch, it took me a long time to be diagnosed with neuropathy, and before that I sought care in the areas of Dermatology, Allergy, and Nutrition. I am not allergic to any foods, so the Nutritionist, whom I totally believe in retrospect to be an expensive quack, talked me into a bunch of non-allergic "sensitivity" tests. I came back with so many "sensitivities" that I had to go on what I like to call a "nothing diet"...seriously there was so little I could eat, I lived on strange nutrition shakes based on rice protein. I did this for 2 months with no change so I can tell you definitively that my symptoms are not food driven.
I do however have a suggestion about how some people might have food driven symptoms: Many of us have bladder and / or bowel issues as part of the PN, and anything that irritates the bladder or bowel would likely cause a generalized increase in pelvic muscle tension and hence a possible neuropathic flare. Acidic foods tend to irritate the bladder. I would assume foods that irritate the bowels vary greatly depending on whether one is more prone to IBS or to constipation, individual senstivities, etc.
I do however have a suggestion about how some people might have food driven symptoms: Many of us have bladder and / or bowel issues as part of the PN, and anything that irritates the bladder or bowel would likely cause a generalized increase in pelvic muscle tension and hence a possible neuropathic flare. Acidic foods tend to irritate the bladder. I would assume foods that irritate the bowels vary greatly depending on whether one is more prone to IBS or to constipation, individual senstivities, etc.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Re: PN diet?
I too have not identified any connections between food and PN.
HM, I agree with what you say about possible food driven symptoms. I am sensitive to wheat - I have tested negative for coeliac, but nevertheless I don't get on well with wheat, rye or barley. So I avoid eating these foods. If I do eat them, I have bowel problems and this flares the PN. So that's an indirect connection. But I have no direct connection between food and PN, none at all.
HM, I agree with what you say about possible food driven symptoms. I am sensitive to wheat - I have tested negative for coeliac, but nevertheless I don't get on well with wheat, rye or barley. So I avoid eating these foods. If I do eat them, I have bowel problems and this flares the PN. So that's an indirect connection. But I have no direct connection between food and PN, none at all.