Neurostimulator

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
TinyDancer
Posts: 46
Joined: Wed Nov 17, 2010 9:07 am
Location: Northern Virginia

Neurostimulator

Post by TinyDancer »

Has anyone heard about or tried the neurostimulator by Medtronics called Restore? It is implanted and stops the brain from receiving nerve pain. It is usually used after failed back surgeries.

Since it looks like I am in for a long haul with pain after surgery, I want to find something that will get me through this time.

Kate
Surgery with Dr. Micheal Hibner March 14, 2011
Am 85% better in only 5 months and so grateful to Dr. Hibner
THIS FORUM ANSWERED ALL MY QUESTIONS!!!
My thanks to all of you.
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Amanda
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Location: Dublin, Ireland
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Re: Neurostimulator

Post by Amanda »

Hi Kate

There are many topics in the neurostimulation section which will give you more details of this type of therapy.
I have a Medtronics Restore Stimulator and have had it for four years now; it is a help but not a cure for this type of pain.
If you want any further details please feel free to ask me.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
TinyDancer
Posts: 46
Joined: Wed Nov 17, 2010 9:07 am
Location: Northern Virginia

Re: Neurostimulator

Post by TinyDancer »

Amanda,
Does it bother you or can you feel it. I asked my pain management doctor and he said that I would be getting zaps from it.
Kate
Surgery with Dr. Micheal Hibner March 14, 2011
Am 85% better in only 5 months and so grateful to Dr. Hibner
THIS FORUM ANSWERED ALL MY QUESTIONS!!!
My thanks to all of you.
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Amanda
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Joined: Thu Sep 02, 2010 2:33 pm
Location: Dublin, Ireland
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Re: Neurostimulator

Post by Amanda »

Kate

Here is the long thread link about stimulators: http://www.pudendalhope.info/forum/view ... ?f=33&t=73

Yes of course I feel the stimulation, but its a gentle tingling in the background, I do get zaps everynow and then especially when I change positions; my stimulator has three programmes so I have to change this when I go from standing to sitting or to lying down if I dont change the programme the stimulation is too intense and in the wrong places.
Physically you cant forget you have a stimulator, as it is a hard protruding box so it does rub against clothing etc, you cant lie on that side nor on your tum apart from all the other restrictions that ive mentioned in the main thread. It is a life long therapy with life changing restrictions as well.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
TinyDancer
Posts: 46
Joined: Wed Nov 17, 2010 9:07 am
Location: Northern Virginia

Re: Neurostimulator

Post by TinyDancer »

Thank you Amanda for the information.

Kate
Surgery with Dr. Micheal Hibner March 14, 2011
Am 85% better in only 5 months and so grateful to Dr. Hibner
THIS FORUM ANSWERED ALL MY QUESTIONS!!!
My thanks to all of you.
Ezzl
Posts: 64
Joined: Fri Sep 24, 2010 6:53 am

Re: Neurostimulator

Post by Ezzl »

Hi Kate,

I too have a stimulator but it is a Boston scientific n is a sacral nerve stim. I have had it v march this yr and still getting used to it and lots of programming.
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Amanda
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Re: Neurostimulator

Post by Amanda »

Ezzl

Where are your leads placed? Where is your stimulator placed?
im curious as I know some people in the UK who have a BS Stimulator they seem to have problems with follow up etc.
Do you have any problems in this regard?
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Ezzl
Posts: 64
Joined: Fri Sep 24, 2010 6:53 am

Re: Neurostimulator

Post by Ezzl »

Hi Amanda,
The leads are placed in the butt crack n the battery is just above my hip but in saying that the battery has moved since placement n needs to be replaced will tell you where on e it's done. Never had a problem with follow up my programmer is avail to take calls whenever which is great
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Amanda
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Re: Neurostimulator

Post by Amanda »

Im glad that you have no major problems, movement of the leads and battery is common, I had mine resited 3 months after original implantation as i had lost a lot of weight so the battery was floating about the place.......mind you now Ive put on that weight but its ok as it is now implanted into the muscle wall.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Ezzl
Posts: 64
Joined: Fri Sep 24, 2010 6:53 am

Re: Neurostimulator

Post by Ezzl »

Hey Amanda,

Since I wrote I have been back in hospital getting the battery repositioned as I lost weight n like u it moved. Since the surgery two weeks ago I got an infection v surgery n a massive abcess that now needs draining cause I feel awful n can't eat etc why don't they tell us these things can happen
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