I'll try to sum this whole story up or me the best as possible. 5 years ago, i got a UTI that led to "Chronic Prostatitis". I was in constant pain for 8 months, mostly burning in urethra and rectal pain. It eventually went away but I still every once in awhile had pain, but rarely. I later came down with a weird neurological illness that was a mystery in its origins, had MRI's everything fine etc. I just have some residual neuro symptoms now that include parethesias in various areas of my body, but all transient. Since then it mostly is better. However, one day out of nowhere I went to have sex and my penis was 99% numb. I had no idea why. My reflexes in my groin area were also gone. I thought about it, and i Did a few long drives where my butt went numb before this all happened. Slowly my reflexes came back and a little bit of penile sensation. Since then my sensation has gotten worse again my penis is almost completely numb. Also the perineum and anus is numb as well. Another weird thing that happened is I have referred sensation now. So for example, when I pee, i can feel a strange sensation in my left foot at the same time.
I really don't know what to do. I am 25 and can't really afford high end doctors and specialists. If I have to go the rest of my life without sex I will probably off myself. It's been about a year with no real good improvements. Can anyone offer me some real hope other than "Find a specialist?"
Desperate for help (numb penis)
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Mountainman
- Posts: 5
- Joined: Sun Jun 26, 2011 1:16 am
Re: Desperate for help (numb penis)
Hey man, sorry to hear about your condition. I'm going through a very similar experience. Mine started like three or four months ago. Gradually lost almost all the sensation in my penis--had trouble controlling my urine (dripping after peeing). Forget about sex. I understand what you're going through, this sucks. I haven't got answers yet but I'm working on it, as this is new to me. Starting with PT and anti inflammatories. Feel free to send me a message anytime. This will get better, man. Keep thinking positive!
Re: Desperate for help (numb penis)
Hi,
I am new to this site (June 24th, 2011) and I went through 2 months of HELL in March and April of this year. After long periods of sitting in pain prior to the episode, my penis began to have a tingling sensation which progressed to numbness and PAIN. I, also, get a burning pain in the perineal area from my scrotum to my anus and at times the penis turned dark (I’m white). After 8 doctors, who had no idea, I began experimenting to find my own solution.
Good news is that I received a tremendous release form my pain after finding a pressure point about an inch and half down from my scrotum and one inch to the left. I researched and found that this spot is the location of the Perineal Nerve which lead me to this website. After applying pressure and message for about 30 minutes about 80% of my pain was relieved for about 2 hours. The penis numbness still persisted, but to a lesser degree. I practiced the massage and pressure point technic a few times a day for about 3 weeks and now the penis pain only comes back when I sit. I stand and walk A LOT to relieve the pain in general. When I do sit, I sit on a “U-shaped” cushion which disperses the weight away from the pelvic floor. These cushions can be found at many pharmacies. You can read about it on this website at http://www.pudendalhope.org/node/45.
This lead me to investigate pressure points and I learn that there is much information to be found that is specific to the pelvic area for PNs. Search under the heading “Trigger Points.” They talk about this a little on the HOPE website at http://www.pudendalhope.org/node/50. There are books written on “Trigger Point” release technics. One of which is “A Headache in my Pelvis” by Dr. Wise. I read it and it is useful for people who have the pain as a result of chronic pelvic area muscle clenching as a result of stress. They recommend techniques and exercising to first stop the muscle clenching habits and then to strengthen the pelvic floor muscles. The authors, also, offer 6-day seminars/clinics once a month in Santa Rosa, California about an hour above San Francisco for about $4,000 which does not include food/lodging(NOTE: They do not take insurance as is the case with almost ALL Dr.s who treat PN.) Their website is http://pelvicpainhelp.com/. There are videos on UTube that demonstrates the methods of how to search for possible pressure point releases.
Since my pressure point (Pain Trigger Point) is on my left side of my perineum, I stretch my left side of my perineum by putting left foot up on the seat of a chair and I lean to the right. I find this releases the muscle and the pain goes away for a while.
My hip appears to be rotated forward and higher on my right side which may be compressing the nerves on my left side. Body alleignment may be something for you to explore. I am going to go to a physical therapist in L.A. who specialize in the Male Pelvic Floor. He was among those listed on HOPE’s website on their HOME page under List of PTs. I am looking for someone who has a comprehensive approach to healing: nerves, connective tissue, muscles, and structural issues.
So to sum-up, I had numbness and PAIN and found a release through a trigger point and a stretching technic. My pain can be released and the numbness has been reduced about 90%. Regarding the referred pain, I experience it in my left leg muscles and in my two smallest toes and additionally in my abdomen. I believe it to be relatively common??? I’ll keep you informed on my Physical Therapy Section.
I thought my life was over, but I now see the possibility of continued improvement. This website, its resources, and most importantly its members seem to be my greatest source of hope.
I wish you well,
Shon
I am new to this site (June 24th, 2011) and I went through 2 months of HELL in March and April of this year. After long periods of sitting in pain prior to the episode, my penis began to have a tingling sensation which progressed to numbness and PAIN. I, also, get a burning pain in the perineal area from my scrotum to my anus and at times the penis turned dark (I’m white). After 8 doctors, who had no idea, I began experimenting to find my own solution.
Good news is that I received a tremendous release form my pain after finding a pressure point about an inch and half down from my scrotum and one inch to the left. I researched and found that this spot is the location of the Perineal Nerve which lead me to this website. After applying pressure and message for about 30 minutes about 80% of my pain was relieved for about 2 hours. The penis numbness still persisted, but to a lesser degree. I practiced the massage and pressure point technic a few times a day for about 3 weeks and now the penis pain only comes back when I sit. I stand and walk A LOT to relieve the pain in general. When I do sit, I sit on a “U-shaped” cushion which disperses the weight away from the pelvic floor. These cushions can be found at many pharmacies. You can read about it on this website at http://www.pudendalhope.org/node/45.
This lead me to investigate pressure points and I learn that there is much information to be found that is specific to the pelvic area for PNs. Search under the heading “Trigger Points.” They talk about this a little on the HOPE website at http://www.pudendalhope.org/node/50. There are books written on “Trigger Point” release technics. One of which is “A Headache in my Pelvis” by Dr. Wise. I read it and it is useful for people who have the pain as a result of chronic pelvic area muscle clenching as a result of stress. They recommend techniques and exercising to first stop the muscle clenching habits and then to strengthen the pelvic floor muscles. The authors, also, offer 6-day seminars/clinics once a month in Santa Rosa, California about an hour above San Francisco for about $4,000 which does not include food/lodging(NOTE: They do not take insurance as is the case with almost ALL Dr.s who treat PN.) Their website is http://pelvicpainhelp.com/. There are videos on UTube that demonstrates the methods of how to search for possible pressure point releases.
Since my pressure point (Pain Trigger Point) is on my left side of my perineum, I stretch my left side of my perineum by putting left foot up on the seat of a chair and I lean to the right. I find this releases the muscle and the pain goes away for a while.
My hip appears to be rotated forward and higher on my right side which may be compressing the nerves on my left side. Body alleignment may be something for you to explore. I am going to go to a physical therapist in L.A. who specialize in the Male Pelvic Floor. He was among those listed on HOPE’s website on their HOME page under List of PTs. I am looking for someone who has a comprehensive approach to healing: nerves, connective tissue, muscles, and structural issues.
So to sum-up, I had numbness and PAIN and found a release through a trigger point and a stretching technic. My pain can be released and the numbness has been reduced about 90%. Regarding the referred pain, I experience it in my left leg muscles and in my two smallest toes and additionally in my abdomen. I believe it to be relatively common??? I’ll keep you informed on my Physical Therapy Section.
I thought my life was over, but I now see the possibility of continued improvement. This website, its resources, and most importantly its members seem to be my greatest source of hope.
I wish you well,
Shon
Last edited by Shon on Tue Jul 19, 2011 7:51 pm, edited 1 time in total.
Re: Desperate for help (numb penis)
Hi Shon,
Thanks for posting your positive experience with massage and trigger point therapy. I hope that PT will bring you additional relief and that you will be able to manage you pain with conservative treatments.
Regarding Dr. Wise and his clinic, you may want to do a search on this forum and read what other patients have posted about his protocol.
It's very common to have referred pain to other areas because other muscles such as the piriformis start to go into spasm and impinge on other nerves. Good luck with PT -- hope to hear some more good news from you soon.
Thanks for posting your positive experience with massage and trigger point therapy. I hope that PT will bring you additional relief and that you will be able to manage you pain with conservative treatments.
Regarding Dr. Wise and his clinic, you may want to do a search on this forum and read what other patients have posted about his protocol.
It's very common to have referred pain to other areas because other muscles such as the piriformis start to go into spasm and impinge on other nerves. Good luck with PT -- hope to hear some more good news from you soon.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.