Northern Ireland
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Candyfloss223
- Posts: 7
- Joined: Tue Jun 21, 2011 2:58 pm
Northern Ireland
I'm so glad for this website, thank you so much to everyone who is brave and helpful to share their thoughts. I've been suffering for months and am only a teen, but was wondering are there any Doctors in Northern Ireland who look into this or how would I go about looking for anything to help my symptoms?
Re: Northern Ireland
Candyfloss
Welcome to PudendalHope I am from Dublin, so south of you.
I dont know of any doctors up North who are PN aware, and few South with very limited resources.
Would you feel free to tell us how you developed this pain and where it is located and we will try to help you further.
Regards
Welcome to PudendalHope I am from Dublin, so south of you.
I dont know of any doctors up North who are PN aware, and few South with very limited resources.
Would you feel free to tell us how you developed this pain and where it is located and we will try to help you further.
Regards
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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Candyfloss223
- Posts: 7
- Joined: Tue Jun 21, 2011 2:58 pm
Re: Northern Ireland
I developed it when I woke up and am unsure of the cause. It began as tingling and orgasm feeling which I couldn't explain to anyone and urge to pee a lot more frequently and into the second and third month it's turned to stabbing, throbbing pain which is very sore and gets worse during the evening. Thanks for reply.
Re: Northern Ireland
Candy, your symptoms sound almost exactly like what I experienced. If there is any way you could get to Dublin to get an evaluation you might get some help from Maeve Whelan, a physiotherapist who is specially trained to treat people with pelvic pain including pudendal neuralgia. I hope the contact info is still current -- maybe you could send her a brief e-mail describing your symptoms and see if she can help. There is also a chance she might know a PT closer to you who is also trained in treating pelvic pain. She may also be able to direct you to a physician who treats pelvic pain.
**Maeve Whelan
Specialist Chartered Physiotherapist
Milltown Physiotherapy Clinic
98 Lower Churchtown Road
Dublin 14
Phone: 01 296 0603
Fax: 01 296 0647
Email: maevemwhelan@eircom.net
www.milltownphysiotherapy.com
www.pelvicphysiotherapy.com
**Maeve Whelan
Specialist Chartered Physiotherapist
Milltown Physiotherapy Clinic
98 Lower Churchtown Road
Dublin 14
Phone: 01 296 0603
Fax: 01 296 0647
Email: maevemwhelan@eircom.net
www.milltownphysiotherapy.com
www.pelvicphysiotherapy.com
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Candyfloss223
- Posts: 7
- Joined: Tue Jun 21, 2011 2:58 pm
Re: Northern Ireland
thank you so much for your help, I'm starting a part-time job to save up and try to seek treatment when I have the money. I'm in my mid teens and haven't told my parents which is why it may be difficult to get to Dublin. How much is treatment roughly and does it relieve or help symptoms? I'm struggling to think what on earth caused it, it may have been exercise but I don't know.
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spikehades
- Posts: 18
- Joined: Fri Dec 10, 2010 4:49 pm
Re: Northern Ireland
hey.
Candy. You need to tell your parents, and seek their support. Also , tell your doctor and get referred to a consultant - get some medical attention asap. This maybe something that you will have to deal with for a substantial amount of time. private medicine is expensive, and Im afraid a part time job won't be nearly enough. There are NHS doctors that can help in England. Seek advice from your gp.
Candy. You need to tell your parents, and seek their support. Also , tell your doctor and get referred to a consultant - get some medical attention asap. This maybe something that you will have to deal with for a substantial amount of time. private medicine is expensive, and Im afraid a part time job won't be nearly enough. There are NHS doctors that can help in England. Seek advice from your gp.
Re: Northern Ireland
Totally agree with what spikehades says.
You need to tell your parents. And you need to see your GP. Both of them will support you. You shouldn't be thinking of saving up money to pay for treatment - that's what the NHS is there for. I think that I am right in saying that in Northern Ireland all prescriptions are free - ? - so that won't be a concern either.
Remember that lots of people on this forum are in America and that paying for treatment, through insurance or otherwise, is pretty much normal over there.
What I would recommend, if sitting is painful, is to try to find a cushion that helps. And only sit with that cushion. I have found this one to be very helpful but it is possible to make something yourself by getting a kneeling pad for use in gardening, and cutting a U shape out of the front - much cheaper!
You need to tell your parents. And you need to see your GP. Both of them will support you. You shouldn't be thinking of saving up money to pay for treatment - that's what the NHS is there for. I think that I am right in saying that in Northern Ireland all prescriptions are free - ? - so that won't be a concern either.
Remember that lots of people on this forum are in America and that paying for treatment, through insurance or otherwise, is pretty much normal over there.
What I would recommend, if sitting is painful, is to try to find a cushion that helps. And only sit with that cushion. I have found this one to be very helpful but it is possible to make something yourself by getting a kneeling pad for use in gardening, and cutting a U shape out of the front - much cheaper!
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Northern Ireland
Please, please tell your parents. You could always print symptoms out on the home page and/or HOPE Letter to Medical Professionals.http://www.pudendalhope.info/forum/view ... profession
To explain it all to them, it's difficult enough having these symptoms without help from those around you. Obviously we will help in any way we can too.
Good luck with it.
Take care,
Helen
To explain it all to them, it's difficult enough having these symptoms without help from those around you. Obviously we will help in any way we can too.
Good luck with it.
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Candyfloss223
- Posts: 7
- Joined: Tue Jun 21, 2011 2:58 pm
Re: Northern Ireland
I will get round to telling them this week and hopefully I can get a referal from my Gp who is on holiday at the minute so I have to wait. Thank you for the advice and I will try to get a cushion like that because it would definitely help. Not too sure how ill sit at school! but hopefully I can get professional help soon.
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Candyfloss223
- Posts: 7
- Joined: Tue Jun 21, 2011 2:58 pm
Re: Northern Ireland
and yes prescriptions are free which makes things better