Just thought I’d provide a quick update. Just finished booking my flight and hotel to NY as I have an appointment setup with Dr. Potter for next Thursday!
I have submitted all paperwork to OHIP and should have an answer as to weather they will cover the cost of the MRI before I leave, I must say it was very challenging to work with Dr. Gordon's office to get this paperwork filled out and better yet filled out completely and properly. Let's keep our fingers crossed....
There is a chance I may have the opportunity to meet Dr. Potter while I am there so is there anything I should ask besides my own personal questions?
Need info on how Dr. Potter's MRI differs from...
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Re: Need info on how Dr. Potter's MRI differs from...
Are you prepared to cover the costs yourself if OHIP ends up denying your application PaulSa? (or if they haven't reached a decision by next week? Because they won't reimburse anything retroactively...that's why my OHIP case manager always told me to hold off on booking anything until I had actually received approval from them)
And agreed re. Dr. Gordon's office. He's a good guy, but they're maddeningly unorganized down there. I just made an appointment to see him (soonest spot available was in a month!) and it took me 2 calls & 3 e-mails over the course of 2 weeks to even get through to anybody (which is actually relatively good for them!!).
Good luck, PS.
And agreed re. Dr. Gordon's office. He's a good guy, but they're maddeningly unorganized down there. I just made an appointment to see him (soonest spot available was in a month!) and it took me 2 calls & 3 e-mails over the course of 2 weeks to even get through to anybody (which is actually relatively good for them!!).
You should definitely try to see her. She spent a good 20 min. w. me going over the images, which really helped make things clearer for me (rather than having to rely strictly on wading through her written report, which is obviously fairly technical). And make sure you ask for a copy of the disc w. the images, which you can get before you leave. She then sends (&/or faxes) her report a few days later.PaulSa wrote:There is a chance I may have the opportunity to meet Dr. Potter while I am there so is there anything I should ask besides my own personal questions?
Good luck, PS.
Re: Need info on how Dr. Potter's MRI differs from...
Pelvis Stressly wrote:Are you prepared to cover the costs yourself if OHIP ends up denying your application PaulSa? (or if they haven't reached a decision by next week? Because they won't reimburse anything retroactively...that's why my OHIP case manager always told me to hold off on booking anything until I had actually received approval from them)
Unfortunately yes, I am prepared to eat the cost. At this point I can't wait any longer and there is no price you can place on your health. We have a contact there and should find out before we go, hopefully. We were also told what is involved in appealing the process.And agreed re. Dr. Gordon's office. He's a good guy, but they're maddeningly unorganized down there. I just made an appointment to see him (soonest spot available was in a month!) and it took me 2 calls & 3 e-mails over the course of 2 weeks to even get through to anybody (which is actually relatively good for them!!).
You should definitely try to see her. She spent a good 20 min. w. me going over the images, which really helped make things clearer for me (rather than having to rely strictly on wading through her written report, which is obviously fairly technical). And make sure you ask for a copy of the disc w. the images, which you can get before you leave. She then sends (&/or faxes) her report a few days later.PaulSa wrote:There is a chance I may have the opportunity to meet Dr. Potter while I am there so is there anything I should ask besides my own personal questions?
Good luck, PS.
Thank you
Re: Need info on how Dr. Potter's MRI differs from...
To be fair, I think it's more a question of his office being overwhelmed by its heavy caseload rather than disorganized . . . Have you ever sat in on one of their mandatory "information sessions"? There were about 200 prospective new patients at the one I attended last year, and they hold these sessions once or twice a week.Pelvis Stressly wrote:
And agreed re. Dr. Gordon's office. He's a good guy, but they're maddeningly unorganized down there. I just made an appointment to see him (soonest spot available was in a month!) and it took me 2 calls & 3 e-mails over the course of 2 weeks to even get through to anybody (which is actually relatively good for them!!).
I think the clinic is seriously underfunded. It would be nice if a corporate donor would donate a big hunk of money to it but unfortunately chronic pain is not a very sexy topic.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Need info on how Dr. Potter's MRI differs from...
Lernica wrote:To be fair, I think it's more a question of his office being overwhelmed by its heavy caseload rather than disorganized . . . Have you ever sat in on one of their mandatory "information sessions"? There were about 200 prospective new patients at the one I attended last year, and they hold these sessions once or twice a week.Pelvis Stressly wrote:
And agreed re. Dr. Gordon's office. He's a good guy, but they're maddeningly unorganized down there. I just made an appointment to see him (soonest spot available was in a month!) and it took me 2 calls & 3 e-mails over the course of 2 weeks to even get through to anybody (which is actually relatively good for them!!).
I think the clinic is seriously underfunded. It would be nice if a corporate donor would donate a big hunk of money to it but unfortunately chronic pain is not a very sexy topic.
I agree, but have you ever had to deal with Dr. Gordon's assistant? (I will not use her name)
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Re: Need info on how Dr. Potter's MRI differs from...
Interesting...Gordon told me there was no way to appeal a negative decision.PaulSa wrote:We were also told what is involved in appealing the process.
Exactly. Lernica, I agree they're overwhelmed, but Gordon's assistant/receptionist is still inexcusably scatterbrained (& often rude...took me years to get on her good side!).PaulSa wrote:I agree, but have you ever had to deal with Dr. Gordon's assistant? (I will not use her name)
Re: Need info on how Dr. Potter's MRI differs from...
She must be related to someone.....Pelvis Stressly wrote:Interesting...Gordon told me there was no way to appeal a negative decision.PaulSa wrote:We were also told what is involved in appealing the process.
Little birdie from OHIP told me.
Exactly. Lernica, I agree they're overwhelmed, but Gordon's assistant/receptionist is still inexcusably scatterbrained (& often rude...took me years to get on her good side!).PaulSa wrote:I agree, but have you ever had to deal with Dr. Gordon's assistant? (I will not use her name)
Re: Need info on how Dr. Potter's MRI differs from...
As expected OHIP denied my claim stating “It’s experimental with no proven results” and that there are similar MRI’s available here in Canada. If Dr. Potter’s MRI shows entrapment I will appeal and then get a second MRI here, if local and we'll see what results we get. Waiting for the letter in the mail which will hopefully go into further detail. Canada really needs to get with the times and respect Dr.’s like Dr. Potter, they probably never looked at her credentials and what she has accomplished. I will keep you up to date as things progress.
Re: Need info on how Dr. Potter's MRI differs from...
Sorry to hear about the setback, PaulSa. But you're going ahead with it anyway? Please let us know how it goes!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Need info on how Dr. Potter's MRI differs from...
Like PaulSa, I will be seeing Dr. Potter for an MRI on May 25. Only a 1.5 instead of a 3T due to the metal in my right hip. Waiting for my insurance approval so may end up footing the bill out of pocket. Long flight (SF to NYC), sure I will be standing in the back of the plane. Like PaulSa, any amount is worth it to me at this point.
Don
Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell