My Therapist "Talks" to my Pelvic Floor

Trigger Point injections, Myofascial Massage techniques, and many more.
Post Reply
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

My Therapist "Talks" to my Pelvic Floor

Post by TracyB7777 »

Yep, you read that correctly, she actually "cheers on" my pelvic floor; begs it to release; encourages it to keep up the good work, etc. :lol: I'm serious here!! How do you deal with a woman doing, yes, INTERNAL PT while cheering you on??? I just keep smiling through the pain, not knowing what to say. I thought she was trying to put a hole from the inside out today working the periformis (sp?) muscle, ah the while I'm cringing trying not to cry out while she's begging it to release. We can not make this stuff up...and yet who'd believe us??? ;)

She's also going for her clinical doctorate and decided to use me as a case study. Everyone in her class was really interested; then she got to the part where she had to provide research studies and guess what...she couldn't find any!!! She had to start over with a different case study. I should've asked how/what it was she was looking up. Will try to remember that next week.

What a world we live in.

8-) Tracy
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Top
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: My Therapist "Talks" to my Pelvic Floor

Post by Lernica »

I so do not miss the excruciating pain of internal PT and the silent tears running down my face. :cry: I'm sorry you are experiencing this and hope that it will bring you some results. I'm feeling for you, Tracy.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Top
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: My Therapist "Talks" to my Pelvic Floor

Post by HerMajesty »

Oh wow Tracy,
How is your muscle supposed to relax when someone is in the process of causing you pain, and acting like a weirdo freak, how is this a relaxing experience?
Are you going to continue to see her?
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: My Therapist "Talks" to my Pelvic Floor

Post by Karyn »

TracyB7777 wrote:Yep, you read that correctly, she actually "cheers on" my pelvic floor; begs it to release; encourages it to keep up the good work, etc.
:shock: Oh, Tracy ... I soooo feel for you, hon! I wondering the same thing as HM: Are you going to continue to see this Cheerleader? ((HUGS))!!!!!!!!!
Lernica wrote:I so do not miss the excruciating pain of internal PT and the silent tears running down my face.
Me, too, Lernica!
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: My Therapist "Talks" to my Pelvic Floor

Post by TracyB7777 »

I truly just don't know what to do. It's so frustrating!!! She is just so sure this is going to help and I don't want to give up too soon just in case this is my one and only chance at getting some relief. I just have no idea what to do. Even went back for two sessions of acupuncture this week. So far no change which is horribly depressing too. Emotionally bad week...luckily the pain levels are pretty much the same around 4-5, sad but that's the norm in my little world. Just thank ful the norm isn't higher.

Any thoughts or suggestions are greatly appreciated!! I truly appreciate everyone on this board so much. It's so difficult to talk to anyone else since they just don't get it.

Tracy
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Top
User avatar
Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: My Therapist "Talks" to my Pelvic Floor

Post by Celeste »

Sometimes it helps to set your own personal time limit on a treatment. Decide how long you are willing to let it go on without any improvement, mark your calendar, and see it through. It helps psychologically to have an end in sight, and it lets you satisfy yourself that you gave it every opportunity.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: My Therapist "Talks" to my Pelvic Floor

Post by Karyn »

Celeste wrote:Sometimes it helps to set your own personal time limit on a treatment. Decide how long you are willing to let it go on without any improvement, mark your calendar, and see it through. It helps psychologically to have an end in sight, and it lets you satisfy yourself that you gave it every opportunity.
Excellent suggestion!
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
User avatar
ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: My Therapist "Talks" to my Pelvic Floor

Post by ezer »

Celeste wrote:Sometimes it helps to set your own personal time limit on a treatment. Decide how long you are willing to let it go on without any improvement, mark your calendar, and see it through. It helps psychologically to have an end in sight, and it lets you satisfy yourself that you gave it every opportunity.
Celeste,
I completely agree and it was the biggest mistake I made. It is how I ended up having so many sessions of PT with no end in sight because the PT claimed to discover something "new" every time.
While it helps to set a time limit, it also helps to have something else lined up to explore afterward in case the present treatment fails you.
To the OP, it annoys me when medical practitioners feel compelled to mix in some cheap psychology. I would walk away.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
Top
User avatar
Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: My Therapist "Talks" to my Pelvic Floor

Post by Celeste »

ezer wrote:Celeste,
I completely agree and it was the biggest mistake I made. It is how I ended up having so many sessions of PT with no end in sight because the PT claimed to discover something "new" every time.
While it helps to set a time limit, it also helps to have something else lined up to explore afterward in case the present treatment fails you.
To the OP, it annoys me when medical practitioners feel compelled to mix in some cheap psychology. I would walk away.
Thanks, Ezer, you made a point I was trying to get at--YOU be in charge of how long this attempt goes on, not a provider.

I do think some are helped by having the next treatment option in the pipeline, but I've seen that others need some time after a failed therapy to reflect and gather information. I think most of us feel like we need to be sure we're not rushing into the wrong thing next, particularly after a failure. Some are able to process that while undergoing a treatment, and others just need some space. Money is an important constraint as well; many will need time to figure out some resources for the next step.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
Top
TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: My Therapist "Talks" to my Pelvic Floor

Post by TracyB7777 »

Great suggestion about setting the timeline!! I actually was going to stop after last week because they couldn't schedule me until June and then miraculously her calendar opened up. I think the end of May will be the end of PT if I"m not showing improvement!!!

Thank you al!!!
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
Top
Post Reply

Return to “PHYSICAL THERAPY TECHNIQUES”