APPT. W/ LORETTA & Dr. HIBNER
We are back from our trip across the country........WOW! Ms. Loretta is SO kind and knowledgable. She spent about an hour with my daughter and confirmed pudendal compression. ( most likely at the clitoral nerve (?) or at the the last branch of the pudendal nerve)
She tried some different massage techniques and definitley thought my daughter had a restricted pelvic floor and is hopeful that stretching, massage and NO STRESS (lol I guess this means no discipline hahah) will make a difference.
(PRAISE GOD)We have home therapy to try and Ms. Loretta has made herself available in the future for questions. I can NOT empahsize enough how glad I am that we saw Loretta as part of our visit, b/c of her ability and experience and Dr. Hibner's trust in her we avoided an exam with Dr. Hibner ( aloso b/c of her age) Loretta does not think the SI joint has anything to do with any of this, she is young her ligaments and joints, and bones are still growing so some give is completley normal and to be expected at this age. So all of the muscle strengthening we were attempting to do through our home PT is helping to keep things tight rather than relaxed. Our improved symptoms are probally more atributed to home school ( less stressful) and the colon clense we had to do when we were preparing for the colonoscopy. So keeping her cleaned out and not allowing her bowells to get backed up will continue to help. ( keeping inflamation down)
I am not discounting our PT pursuit here at home, I just TRUST what Loretta says as she is VERY knowledgable. And if you recall some of the exercises we tried early in PT made things worse, I shared with loretta those stretches we did with the band around the knees( PT) and the leg lifts she did at the boxing gym when her dad took her to work out, and they made symptoms worse immeadiately. She said that would be expected given the location of compression b/c those exercises irritated the nerve by cuasing those muscles to tighten. I asked Loretta about Yoga and she thought that would actully be beneficial, so I amlooking into that.
Our appt. with DR. HIBNER.....there is something about the anticipation of getting to this point. (I was very emotional, and we met a lady from California who was there after an 8 month wait to see him for PN as well, (I trust you had a good experience with him.) He IS SOOOOOOOOOOO kind and caring. She is the youngest patient both he and Loretta have seen and they both were hoping this was not what she was dealing with. Dr. Hibner met my little girl and was so kind to her, very calming. He wants us to try the things Loretta put in place and call him in a couple of months. Down the road IF things are not improving we will discuss doing a nerve block. This block would be doen in the operating room uinder sedation (obviously b/c of age) and would NOT need to go into the pudendal nerve. Instead he would go directly to the clitoral nerve ( the last branch of the pudendal nerve) which he says is the most non invasive type of block he could do. He would use a very small needle and it would be ultra sound guided. Of course he cannot promise that it won't make things worse, so we would cautiously consider this if needed in the future.
Over all a trip worth the money.(I am thankful for faithfulness/ We had favour
) I hope they will use my daughter as a case study, to pave the way and bring this to light for other children.I will let you know how our home therapy goes.
Thanks for your thoughts and prayers
MOM
