Living with PN and teenagers
Re: Living with PN and teenagers
Generally speaking I do not sit in the passenger seat with my kids driving until AFTER they have completed their driving lessons with a professional. It's too stressful and not good for our relationship (which is just peachy as you can see from my previous postings).
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Living with PN and teenagers
This thread is interesting to read - here in the UK you cannot legally drive on public roads before your 17th birthday, not even as a learner. And the insurance premiums that are asked, if you have a young person under the age of 25 driving, well, they are just outrageous. It can be more than the cost of their car.
I gather things are different in the US!
I gather things are different in the US!
Re: Living with PN and teenagers
Oh he's had professional training. Here in Michigan they have two segments of training. The first is basic learning how to drive, and the second is a defensive driving course. He has been through both! He just gets cocky and a little over confident and we've had several near misses! It's too damn stressful for me right now. I told my husband that he would have to take over from now on.
If I'm not able to drive for a while after my surgery, I'm just not going to worry about it. Things will get done one way or another.
Calluna, I think you guys have it right!
If I'm not able to drive for a while after my surgery, I'm just not going to worry about it. Things will get done one way or another.
Calluna, I think you guys have it right!
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Re: Living with PN and teenagers
My eldest got into medical school! She'll be starting at a very reputable Ontario school in the fall. I'm so proud and happy for her. She worked very very hard for it over the past four years in a difficult B. Sc. program.
So there's at least one more PN-aware doctor coming up in the ranks!
So there's at least one more PN-aware doctor coming up in the ranks!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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TracyB7777
- Posts: 196
- Joined: Mon Sep 27, 2010 3:42 am
- Location: Vail, Arizona
Re: Living with PN and teenagers
That is Fantaticnews! Congratulations!!!
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now.
Re: Living with PN and teenagers
That's wonderful!!!!! Wooooooooo-Hooooo!!!!!! Thanks for sharing this with us, Lernica!!!!Lernica wrote:My eldest got into medical school! She'll be starting at a very reputable Ontario school in the fall. I'm so proud and happy for her. She worked very very hard for it over the past four years in a difficult B. Sc. program.
xo
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Living with PN and teenagers
Lernica
I wish your child the best of luck in learning about PN in medical school......educate him as best as you can!! We need all the help we can get to educate future doctors to know about our condition.
I wish your child the best of luck in learning about PN in medical school......educate him as best as you can!! We need all the help we can get to educate future doctors to know about our condition.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Living with PN and teenagers
Congratulations to your daughter, Lernica! It's a long haul getting through med-school -- my son's a 4th year med student so I know the hard work that has gone into this milestone in your daughter's life.
There is a bit of doctor bashing that goes on around here (sometimes for understandable reasons) but I think we often forget the sacrifice that these kids make going to school for half of their lives and putting everything else on hold. Then when they do get out of school the demands on their lives are incredible. She will need all of the support she can get from you!
There is a bit of doctor bashing that goes on around here (sometimes for understandable reasons) but I think we often forget the sacrifice that these kids make going to school for half of their lives and putting everything else on hold. Then when they do get out of school the demands on their lives are incredible. She will need all of the support she can get from you!
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Living with PN and teenagers
I know of a lady from Australia who is doing a Phd on the very subject. PNE. She is including Prof. Vancaillie and myself in her work. When it's finished and has been appproved I will ask her if she'll post a link to her thesis.
Catherine
Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: Living with PN and teenagers
Its not so bad for you. How about living with PN as a 25 year old who will probably never get to have a family or a wife now because of the penile pain. At least you got to live your life somewhat. Not that im downplaying your case, but I just woke up one day and this pain appeared out of nowhere, what I would give to have a chance for a normal life again...