I have nothing interesting at all to report, but just a quick hello to everyone. Been on a bit of a technology diet, so haven't been on the site much. Just tried to catch up - send my best to you all. More later,
Cora
Just a hello
Just a hello
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
Re: Just a hello
Hi Cora,
Welcome back! How are you feeling these days?
Warm regards,
Karyn
Welcome back! How are you feeling these days?
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Just a hello
Doing pretty ok. I just followed up on the long thread on Nortryptiline. Great discussion. Has me wondering if you should make the switch. Doing pretty well on current meds,but again, ambivalent about being on narcs forever. But all in all, good pain management, some not so great side effects... in the middle of a Cymbalta taper and may just try tapering the Kadian and try the Nortryptiline. Can always go back if not well managed. So, pretty much same ole' same ole . How are you doing Karyn ?
XO
Cora
XO
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
Re: Just a hello
Hi Cora,
I'm so very happy to hear you found a pain management person you're comfortable with! I think that's half the battle! I understand how you feel about the side effects. I'm also one of those who's extremely sensative to meds. I wish you the best with tapering off the Cymbalta! I'm very excited for you! What is Kadian? I don't think I've ever heard of it before.
I'm recovering from bilateral TG surgery and doing pretty well! The surgery was a week ago today, so I have some pretty significant incison/surgical pain, but that's about it. I stopped taking the hydromorphone yesterday morning and have been managing on ibuprofen. So far, so good!
With love,
Karyn
I'm so very happy to hear you found a pain management person you're comfortable with! I think that's half the battle! I understand how you feel about the side effects. I'm also one of those who's extremely sensative to meds. I wish you the best with tapering off the Cymbalta! I'm very excited for you! What is Kadian? I don't think I've ever heard of it before.
I'm recovering from bilateral TG surgery and doing pretty well! The surgery was a week ago today, so I have some pretty significant incison/surgical pain, but that's about it. I stopped taking the hydromorphone yesterday morning and have been managing on ibuprofen. So far, so good!
With love,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: Just a hello
Hi Cora,
Glad to see you around these parts again. I'm not much of a dieter, but I know I would REALLY fail at a technology diet
Lauren
Glad to see you around these parts again. I'm not much of a dieter, but I know I would REALLY fail at a technology diet
Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.