MAYO CLINIC

[JRS]

I am interested if anyone has been referred to the Mayo Clinic for evaluation of their problems. And, if so, was there any knowledge/help available? (I'm thinking it might just be a wasted trip and a lot of money better spent elsewhere...)

[Celeste]

There have been people who have gotten diagnosed at Mayo. They actually did a few surgeries there several years ago but have discontinued it. I think most doctors would accept Mayo's findings, but if you wanted to pursue surgery you would definitely have to do it someplace else. I do think Mayo is more open to diagnosing it, whereas Cleveland Clinic (from what I've heard from other Ohioans) really doesn't put much stock in PNE or decompression surgery.

[Violet M]

My understanding is that Mayo Clinic is into treating PNE with conservative therapies such as PT -- and that's something you can probably do closer to where you live without having to travel all the way to Mayo.

[AZguy]

Living 20 miles from the MAYO clinic in Scottsdale, AZ, I thought about pursuing treatment there, but when I applied to see doctors, and mentioned pudendal neuralgia, they immediately called me back and said they didn't have anyone that could help me. Just an FYI. This was last week.

[ezer]

AZguy,
Thanks for the feedback. It is what I heard multiple times. Mayo is results oriented and they want to keep their successful image. The outcome of PNE surgery being unfortunately hard to predict, they won't touch it.