Hey J,
Thats great news about ur pain level;s i hope they continue to improve. Ill keep u updated and let u know how the permanent stim goes
New Pain relief treatment
-
catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: New Pain relief treatment
Hi Erin,
How is it all going? Are you home again from hospital? Has the infection gone? If you can manage to sit at the computer we'd love to hear from you regarding the stimulator implant. I know it's not easy for you at the moment but your experience will help others. Hope it's all going well and you get away for your holiday.
Get well soon.
Catherine
How is it all going? Are you home again from hospital? Has the infection gone? If you can manage to sit at the computer we'd love to hear from you regarding the stimulator implant. I know it's not easy for you at the moment but your experience will help others. Hope it's all going well and you get away for your holiday.
Get well soon.
Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: New Pain relief treatment
Hi Catherine and fellow pns
Its been 2 weeks now since ive had the permanent stim, its not working 100% atm and need to go in on tuesday to see prof and get the stim checked and re programmend. Since the infection has gone i have felt heaps better, when the stim was working i was able to reduce my ms contin so im on the mends but have had to increase it in the meantime. Its a weird sensation having the stim i have it on cycling atm which is 2 minutes on 2 minutes off so the nerves can settle down and get used to the stim. Still in the early days, have been told it can take awhile to get the full effect.
Its been 2 weeks now since ive had the permanent stim, its not working 100% atm and need to go in on tuesday to see prof and get the stim checked and re programmend. Since the infection has gone i have felt heaps better, when the stim was working i was able to reduce my ms contin so im on the mends but have had to increase it in the meantime. Its a weird sensation having the stim i have it on cycling atm which is 2 minutes on 2 minutes off so the nerves can settle down and get used to the stim. Still in the early days, have been told it can take awhile to get the full effect.
-
Stephanie P
- Posts: 74
- Joined: Mon Oct 11, 2010 10:06 am
Re: New Pain relief treatment
Hi Erin,
Many thanks for letting us know how you're getting on. It was good to hear you're over the infection and can start adjusting to the stim. Will be following your progress with great interest. Good luck! Stephanie
Many thanks for letting us know how you're getting on. It was good to hear you're over the infection and can start adjusting to the stim. Will be following your progress with great interest. Good luck! Stephanie
Pudendal neuralgia, diagosed as ischial bursitis, from 1985. Worsened by fall in 2003. Bilateral TG surgery in Nantes 2004. Nerve flattened both sides. No improvement, still cannot sit.
Re: New Pain relief treatment
Do you all know if anyone has received decent results with a sacral stimulator without having surgery first?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: New Pain relief treatment
Hi Faith,
The stimulator we have here in AUSrTRALIA is called a precision plus. And yes there are several people that have had sucess from the stim without surgery.
The stimulator we have here in AUSrTRALIA is called a precision plus. And yes there are several people that have had sucess from the stim without surgery.
Re: New Pain relief treatment
Hi erin,
My doctor advertises the percision plus too. I was just under the impression it didn't really help pre-op. ARe you able to sit at all with it? Where do you all have it implanted, on the sacral nerve roots or the PN? I can't seem to find good research on it. The only thing I have seen is it helped people with incontinence from PN. Does it help you all who have it with other issues?
Thanks!
My doctor advertises the percision plus too. I was just under the impression it didn't really help pre-op. ARe you able to sit at all with it? Where do you all have it implanted, on the sacral nerve roots or the PN? I can't seem to find good research on it. The only thing I have seen is it helped people with incontinence from PN. Does it help you all who have it with other issues?
Thanks!
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: New Pain relief treatment
Catherine A,
I saw that you have a roho cushion. What kind do you have. I am in the process of trying to get one.
I saw that you have a roho cushion. What kind do you have. I am in the process of trying to get one.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-
catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: New Pain relief treatment
Hi Faith,
I purchased my Roho cushion online from The Roho store. http://www.therohostore.com/Departments ... ating.aspx
Model no. LTVC.
Ness, who posts on here has the same one. After trying various cushions we both agree that we're quite satisfied with this one.
I couldn't afford to spend hundreds of dollars on a cushion but I'm very happy with this. it comes with a small pump to make it as soft or as firm as you want.
It came from the US but arrived door to door delivery by FedEx in 5 days.
cheers,
Catherine
I purchased my Roho cushion online from The Roho store. http://www.therohostore.com/Departments ... ating.aspx
Model no. LTVC.
Ness, who posts on here has the same one. After trying various cushions we both agree that we're quite satisfied with this one.
I couldn't afford to spend hundreds of dollars on a cushion but I'm very happy with this. it comes with a small pump to make it as soft or as firm as you want.
It came from the US but arrived door to door delivery by FedEx in 5 days.
cheers,
Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.