Health Organization for Pudendal Education

Hi Ocelot I am in Sydney and also attend the clinic in Sydney and have seen Prof V.I have had a lot of help from Amy the osteopath-my problem seems to be mainly bio mechanical/sacro iliac joint etc.Since Amy is a genius-since she has been on maternity leave I have gone backwards somewhat---am lookin...

Sorry everyone about my post appearing 3 times!!!! No idea why...maybe because I have to type lying down on my bed and me elbows and arms go to sleep after a while!!!@#

All I know is that very very very few medical professionals know anyhing about PN or any nerve pain in the pelvis----this is new territory.I imagine especially in a country as small as new zealand.Basically if all your other investigations have come back as a dead end, and you think from your resear...

All I know is that very very very few medical professionals know anyhing about PN or any nerve pain in the pelvis----this is new territory.I imagine especially in a country as small as new zealand.Basically if all your other investigations have come back as a dead end, and you think from your resear...

All I know is that very very very few medical professionals know anyhing about PN or any nerve pain in the pelvis----this is new territory.I imagine especially in a country as small as new zealand.Basically if all your other investigations have come back as a dead end, and you think from your resear...

Hi meepmeep, I love going to the movies and refuse to stop going because of my PN.I basically lie on the seats......some cinema seats have side arms that fold up-that makes it easy.I take a cushion and side lie down and ret my head on thecushion.If the side arm doesnt fold up, I curse[!] then curl u...

OMG you poor girl.I so feel for you, having to deal with horrendous pain and also having to deal with the blind ignorance of some doctors.There have been many medical conditions over the years that drs have not recognized and basically patients have been told they are insane.If a dr has not been tau...

Hi MMathis, I took Tramadol for 5 months on and of for pain flares.I agree that is very good for PN pain, I took 100 mg and would get pretty much 8 hours pain relief.The only initial side effect was terrible insomnia and I felt really speedy and a bit hyper like Id had 20 coffees.But then out of the...

Hi Catherine, Sorry about not replying sooner, I dont check the forum that often. I do think a consultation with Amy could shed some light on your pelvic myalgia pain.At least in Australia, I think Amy is among the best we have, especially with reagrd to the whole musco skeletal system and PN. Yes, ...

Im adding this post to the last one, as for some reason I wasnt able to type anymore.I just wanted to add that everyone is different and unique with this bloody awful condition.No one professional we see has all the answers.This is a newly recognised condition and the experts too are learning.To any...