Health Organization for Pudendal Education

Sorry for my long absence. Below is an update on my surgery. The surgery was in December 2018 so it’s been about a year and a half since surgery. I consider it a success and have had 60-70% improvement and much better quality of life. I hope this helps others that are considering this option: The go...

All, I had surgery with Dr. Dellon in December and wanted to share the results so far with the board. I've read all the feedback about Dellon on this board so I went into this with open eyes and modest expectations. I've personally had a good experience with him overall. My symptoms were essentially...

I got some more information from Dr. Dellon about this approach: My symptoms are perineal/scrotal only. No issues with rectal branch or dorsal branch. The surgical approach that Dellon uses for these symptoms is an "anterior" approach in that an incision is made adjacent to the scrotum nea...

For folks who are considering PRF, here is my experience with it: I had the PRF with Dr. Richard in Baltimore on November 5th. Previously I had tried PT, medication, two botox injections, and a variety of nerve blocks (GF, superior hypogastric, ganglion impair) with no success. I had about two weeks...

It looks like the PRF will be covered by my insurance. I'm with Aetna. I doubt they would cover a cyroablation but I'll check that if and when I consider it more seriously. I was referred to Dr. Richard originally by Dr. Marvel for a nerve block. I don't know if he takes new patients directly, but i...

Quick update... I had a botox injection into the left Obturator Internus muscle by Dr. Fritz and his team at Johns Hopkins. The doctors said that if I were to feel relief, I would feel it within a week. I am now a week and a half into it and have not had any relief so I doubt it will help for me. I ...

Violet, Yes, according to the Dr. Prologo interview on the front page as well as my conversation with Dr. Richard, it is difficult to just isolate the perineal branch. They say that they apply the treatment in the Alock's Canal. If I am understanding my anatomy correctly, that would mean that the tr...

Violet, This study is the only one I could find that mentions resecting the perinael branch: https://www.ncbi.nlm.nih.gov/pubmed/28259114. I couldn't find anybody on here that has used that approach. If I do pursue surgery, I'm trying to make sure I understand which approach would be most effective ...

My main concern on the surgery is that I don't know for sure that I have entrapment. I have a report from a good doc that I trust that there was suggestion of scarring at Alcock Canal during a nerve block, but no definitive findings on an MRI (or even a hint on an MRI) that there is something trappi...

Violet, He suggested that the risks on the pulsed radiofrequency are minimal, and similar to a nerve block. It seems like there is a chance for a flare-up, but also some hope for some medium-term relief. On cryoablation, I asked him specifically about the risks of causing issues with incontinence or...