Search found 6 matches

by janet66
Mon Jun 29, 2020 9:13 am
Forum: MRI/MRN
Topic: Question about MRN
Replies: 2
Views: 3009

Question about MRN

I live in Sweden. No doctors are specialized in PN/PNE here. It has been a long struggle to get help, five years now. I have a doctor, a young neurologist and he says that we can do a MRN of the nerve but there are no doctors that can read the results...my question is does anyone know if there are a...
by janet66
Mon Mar 19, 2018 10:52 am
Forum: WELCOME CENTER
Topic: Where can I get a nerve x-ray?
Replies: 12
Views: 1960

Re: Where can I get a nerve x-ray?

Hi Violeth, I have sent a mail to Maeve and hopefully she can recommend someone that can help in Sweden. Thanks for that! There is one hospital in Sweden where they recently started a place for people with cronic pelvis pain (included PN!). I have been trying to get an appointment with them several ...
by janet66
Mon Mar 19, 2018 10:43 am
Forum: WELCOME CENTER
Topic: Where can I get a nerve x-ray?
Replies: 12
Views: 1960

Re: Where can I get a nerve x-ray?

Hi again April, It took a few days for me to check if we have 3TMRI scans closer to where I live. If I can persuade a doctor to give me a new scan but with 3T instead of the 1,5 that I had 4 years ago there is a possibility in a town not more than 1 hour with train from here, so that would actually ...
by janet66
Wed Mar 07, 2018 3:29 pm
Forum: WELCOME CENTER
Topic: Where can I get a nerve x-ray?
Replies: 12
Views: 1960

Re: Where can I get a nerve x-ray?

Dear April, Thanks for your quick answer. I have been reading a lot on this website about the different doctors who are working with PNE . The thing that is very difficult is that it seems nearly impossible for me to choose one of them as they all use different operationtechniques. I don´t have anyo...
by janet66
Wed Mar 07, 2018 3:00 pm
Forum: WELCOME CENTER
Topic: Where can I get a nerve x-ray?
Replies: 12
Views: 1960

Re: Where can I get a nerve x-ray?

Hi Johnny, Thanks for your answer! I thought it would be possible to see if the nerve is trapped in scartissue using a 3T MRI. I listened to a woman in New York on Youtube and she was describing PNE diagnosis and symptoms. Her doctors had discovered 15 years ago that her pudendusnerv was caught in a...
by janet66
Sat Mar 03, 2018 3:37 pm
Forum: WELCOME CENTER
Topic: Where can I get a nerve x-ray?
Replies: 12
Views: 1960

Where can I get a nerve x-ray?

I have suffered from what I believe is a pudendal nerve entrappment for nearly five years now. The doctors here in Sweden where I live don´t know anything about this condition so I have been struggling by my self for several years know. The pain developed slowly after a forced yogaposition, trying t...

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