Health Organization for Pudendal Education

Hi everyone I just wanted to let you know that for me the sacral nerve stimulator has changed my life. I’m about 6 weeks post op and am off all painkillers. Waking up from surgery the surgical wounds hurt more than the pelvic pain I lived with. It’s changed my life. I’m so happy and I want to say pl...

Hello everyone. I had the permanent implant inserted on Friday, and switched on Saturday. I’m happy to report that the stimulator is working and the only pain I feel is from the wound sites. Let’s keep it that way!

Thierry Vancaille in Sydney is amazing. He specialises in pain management and understands and listens! Many women and men travel from all over the country to see him. I was suicidal before I saw him and after working our way through different types of procedures to fix this, I’m having a sacral nerv...

Thanks Violet. The insomnia is not helping either!

Since I had the trial leads removed, the pain has come crashing back. I can’t sleep and am taking huge quantities of panadol, neurofen and tapentadol in SR and IR form. The energy that I had from the trial is long gone, and I am Fatigued and hurting. The good thing is that I know it works, but I hav...

Sure is April. Surgery can’t come soon enough - because the pain sucks especially when I know I am so close to being significantly pain free!

Hi everyone I am so pleased. I had a week long trial of the SNS and as soon as it was switched on I had blessed relief I was so excited going into the surgery. It was really interesting because the incision wounds hurt more than the pure all nerve pain! I was able to walk go out for dinner twice dur...

I’m just wondering if anyone has had success in claiming NDIS assistance for PNE. If you have I would love some advice.

Well I can say that I have reacted well to the infusion - I’ve been on thendrip for four days and have seen a drop in the excruciating chuck the towel in pain. I haven’t had any reaction to the ketamine. At the very least so far I can say that I have gone as low as pain scores of 2 - which is nothin...

Is there anyone who can tell me what it feels like to have the ketamine infusion? I reached the point last week where I just wanted out. I contacted my Dr and he has immediately booked me in for an infusion. Will I be groggy and just sleep while on it? Will I be spacey or feeling like I’m on a bad t...